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Blog Posts

Xenon Reply

Posted by Davipot on September 30, 2014 at 7:59pm 0 Comments

Hi Folks,

I have been low key for a while as I haven’t had anything else to add, Emily has started a raw Vegan diet and is using Organic…

Continue

ClinicalTrials.gov Studies

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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.

Forum

Medications

Started by Danni M in General. Last reply by Danni M Oct 7. 16 Replies

Would anyone be willing to share what meds you take,what has worked. I was having success with lyrica 25mg 4x per day but by doc told my to increase. I did and what a mistake. So much more burning. I tried to back down but was worse. I'm stuck. Now…Continue

Ketamine Infusion

Started by Tizzy in General. Last reply by mads 5 hours ago. 35 Replies

Hello, to those who have not tried a ketamine infusion for pain. I am currently an in-patient at the St Vincents pain clinic after a nasty couple of weeks. My EM seems to have progressed in severity and into a more extensive distribution. Don't know…Continue

Foods and Food Additives that may cause FLARES in EM

Started by frostbite in General. Last reply by frostbite Oct 14. 19 Replies

Burning feet is characterized by severe aching, stinging and burning sensation of the feet. This may also be accompanied by sweating, swelling and inflammation of the affected foot/feet. While usually the burning sensation is limited to the soles of…Continue

HOTDESK : The latest in pain research news - September 2014

Started by mads in General. Last reply by MtnGypsyGirl Oct 14. 15 Replies

Dear Members,Just to inform you that we are starting a new feature called 'Hotdesk'. From October 1st we are going to be bringing you a monthly update of 'whats hot 'and 'whats not' in terms of the most interesting, informative and bizarre pain…Continue

Article about Understanding Someone with Chronic Pain

Started by lisers in General. Last reply by Pesto Oct 7. 10 Replies

http://www.wikihow.com/Understand-Someone-With-Chronic-PainThis is an excellent article!  I thought I'd share this because as dizzy posted one doctor told her…Continue

ICE - Friend or Foe Revisited (BENS FRIENDS RECOMMEND THAT 'ICING' SHOULD ALWAYS BE UNDER MEDICAL SUPERVISION .)

Started by Tizzy in General. Last reply by Tizzy Sep 29. 32 Replies

Hello all,I thought that it would be useful to rethink this topic in the context of questions asked last time and also because the lovely Miss Maddy asked me to.Most of you who have been on the forum for awhile know that I am a physiotherapist…Continue

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Latest Activity


Moderator
mads replied to Lauren's discussion Temper, temper...(Revisted)
"Hi Jane, Sorry- dont know how that got through. Registered 2012. Would you like us to notify the…"
10 minutes ago
chuffy left a comment for Nel
"Since I've "only" had 4 episodes, I haven't tried many things.  I…"
21 minutes ago
chuffy left a comment for Alina Delp
"I used Capzasin OTC gel and it took the symptoms on the palms of my hands away completely.  Or…"
28 minutes ago
Jane replied to Lauren's discussion Temper, temper...(Revisted)
"I didn't know there was another Jane in here!  Nice! I get fussy and emotional, more than…"
2 hours ago

This Week on Living With Erythromelalgia 

1 Tizzy

Tizzy

Queensland, Australia

2 Veerla

Veerla

Utrecht, Netherlands

3 Moongirl

Moongirl

Manchester, IA, United States

4 Seattlegirl

Seattlegirl

Randle, WA, United States

5 scanfield1

scanfield1

Fishers, IN, United States

 
 
 

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