Lyme Disease
I am convinced that my son's EM is secondary and not primary. Therefore, I have been doing…See More
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EM
Posted by FreddyJr on February 14, 2012 at 3:57pm 1 Comment 0 Likes
Can anyone explain erythromelagia of the ears? Different from most people with condition on hands and feet. Nothing (medication) seems to alleviate episodes. Continued flares on a daily once my body temperature rises or around…
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Posted by Scott Orn on February 10, 2012 at 5:47am 0 Comments 0 Likes
I’m the co-founder of this site and help run a group called Ben’s Friends (www.BensFriends.org) that builds patient support networks for people with rare conditions. I do this cause I love it. I’ve met so…
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Lyme Disease
Started by Mama San in General 2 hours ago. 0 Replies 0 Likes
I am convinced that my son's EM is secondary and not primary. Therefore, I have been doing extensive research in trying to find out the cause. He was tested for numerous things that have all come back negative but found some evidence that Lyme…Continue
Low blood pressure
Started by Tullilou in General. Last reply by Claudette 8 hours ago. 9 Replies 0 Likes
I am wondering if there is a correlation between EM and low/low normal blood pressure. My blood pressure runs around 80/60 and I am interesting in learning if others with EM have similar findings.
What does your pain feel like?
Started by cgerula in General. Last reply by Kentuckian 10 hours ago. 6 Replies 0 Likes
Hello my friends,I was wondering what everyone's description of pain is when they have an EM flare up? My EM has progressed and the tingling pain I have been feeling has started to include stinging burning painful feelings as well. I also tend to…Continue
How quickly did things progress for you?
Started by Cilmber in General. Last reply by kruizerchick on Sunday. 4 Replies 0 Likes
I appreciate all the welcome and support.Right now my symptoms seem fairly mild and intermittent although very disruptive to my sleep --that's when I get the worst flares. I have Raynaud's also and tend to be cold a lot (anemic and low body…Continue
Hot and cold
Started by Lauren in General. Last reply by kruizerchick on Sunday. 7 Replies 3 Likes
Hi, I was wondering if anyone experiences this, (apart from EM, which I know does) does anyone in there whole body if your warm you are the warmest of warm and are real hot and sweaty? And if your cold, your the coldest of cold! and are shivering?…Continue
Dr in texas
Started by KD in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Emily Williams on Saturday. 5 Replies 0 Likes
Does anyone know of any doctors near North Texas area? I cant seem to find any doctor that has ever heard of EM in this area. I'm convinced this is what I have. I can not wear socks anymore without causing a flare. Summers here are painful. My…Continue
Tags: recommendation, In, texas, Dr
Latest Activity
Thank you! Now I just have to figure out how to respond on this site! I am insisting the doctor check him for Lyme Disease!
Status posted by Mama San
lauraflora1 left a comment for usakdp
Welcome to the group... It's a friendly supportive place to be...!
lauraflora1 left a comment for BigEd73
Welcome to the group... It's a friendly supportive place to be...!
John "JC" Colyer left a comment for BigEd73
Welcome Big Ed , I know you will connect with good people here that will offer you support and…
Claudette replied to Tullilou's discussion 'Low blood pressure'
My blood pressure is also on the low side. I do not take any medication.
Videos
Top Content
| 1 |
Diet to keep flares at bay..??Posted by lauraflora1 on January 24, 2012 |
| 2 |
How were you diagnosed? What kind of testing did you have done?Posted by Cilmber on February 1, 2012 |
| 3 |
Low blood pressurePosted by Tullilou on February 20, 2012 |
| 4 |
Varying Degrees?Posted by MMC on February 4, 2012 |
| 5 |
Hot and coldPosted by Lauren on February 11, 2012 |
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