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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
I became very frustrated after seeming a dermatologist yesterday. Only positive in her words she calling all specialists to get together to look through photos and my blood work. what she said seemed to be ok. She said for you to get EM at age 30…Continue
While aspirin seems to have been working for the past 10 days with regard to my pain and, for the most part, redness, my eyes have started getting painfully dry before bed. Has anyone else experienced this? I'm also having headaches (I wake up with…Continue
I started taking 250 mg of Magnesium 4 weeks ago and for about 2 weeks, I didn't notice any difference with my EM flare-ups, pain, or swelling in my feet. I was going to stop taking it altogether but because I had already loaded my pill box for the…Continue
First, thanks for adding me to the group. Here is a little background for out story. My daughter, Caelyn, is 5 years old and was officially diagnosed with EM earlier this month. Doing what research I can, I completely agree with the diagnosis. …Continue
Hello, my name is Joy and I just joined this site! About a year ago I started having severe foot pain in both feet. For moths I went to podiatrist thinking I had plantar fascitiis. But a recent MRI showed everything was normal in both feet. My…Continue
Hello all,Over the past six months I have been experiencing strange vibrating sensations within my body. They only occur while I am asleep ( they wake me) or just as I am waking up and only last for a couple of minutes at most. They can feel quite…Continue
I was recently diagnosed with EM. It's full blown; the telltale symptoms came on very quickly. My neurologist said I should limit the time I am on my feet to 30 minute segments. I haven't been following his advice and have been suffering daily…Continue
was wondering how many if any have fibromyalgia. My mam has had fibromyalgia since she was 23 years old. She suffers with pain and sweats. She also has diabetes.That is something I don't have. Mam seems to suffer more with cold hands than hot.Is the…Continue
I have been seeing a lot of posts talking about how NSAIDS/antihistmains causing less flaring for people on this em forum and others. I think i found out why. I was looking over some studies on chronic inflammation and found that…Continue
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