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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.

Forum

At what age?

Started by ajcb bella in General. Last reply by Jules G 4 hours ago. 1 Reply

I became very frustrated after seeming a dermatologist yesterday. Only positive in her words she calling all specialists to get together to look  through photos and my blood work. what she said seemed to be ok. She said for you to get EM at age 30…Continue

Anyone have issues with dry eyes?

Started by NolaSue in Symptoms and Their Management. Last reply by Grammy 12 hours ago. 12 Replies

While aspirin seems to have been working for the past 10 days with regard to my pain and, for the most part, redness, my eyes have started getting painfully dry before bed. Has anyone else experienced this? I'm also having headaches (I wake up with…Continue

Breakthrough with Magnesium

Started by rondp43 in General. Last reply by Grammy 12 hours ago. 5 Replies

I started taking 250 mg of Magnesium 4 weeks ago and for about 2 weeks, I didn't notice any difference with my EM flare-ups, pain, or swelling in my feet.  I was going to stop taking it altogether but because I had already loaded my pill box for the…Continue

Tags: Magnesium, treatment

Need help so that I can help my 5 year old

Started by Egmoore77 in General yesterday. 0 Replies

First, thanks for adding me to the group.  Here is a little background for out story.  My daughter, Caelyn, is 5 years old and was officially diagnosed with EM earlier this month.  Doing what research I can, I completely agree with the diagnosis. …Continue

Not sure if I have erythromelagia

Started by Joy bby in General. Last reply by Jules G yesterday. 1 Reply

Hello, my name is Joy and I just joined this site! About a year ago I started having severe foot pain in both feet. For moths I went to podiatrist thinking I had plantar fascitiis. But a recent MRI showed everything was normal in both feet. My…Continue

19 pm ...

Started by Melodie in General. Last reply by Dragica on Tuesday. 32 Replies

Hi,Every evening around 19pm, I started to have cold with chills throughout the body and at the same time my feet become more red and hot.Is it the same for you?Continue

Vibrating sensation in body

Started by Bluebell in Symptoms and Their Management on Tuesday. 0 Replies

Hello all,Over the past six months I have been experiencing strange vibrating sensations within my body. They only occur while I am asleep ( they wake me) or just as I am waking up and only last for a couple of minutes at most. They can feel quite…Continue

Tags: Vibrating

Can repeated flareups cause permanent neurovascular damage or hasten the progression of EM?

Started by Beth L in Symptoms and Their Management. Last reply by Beth L on Monday. 3 Replies

I was recently diagnosed with EM. It's full blown; the telltale symptoms came on very quickly. My neurologist said I should limit the time I am on my feet to 30 minute segments. I haven't been following his advice and have been suffering daily…Continue

Tags: EM progression, neurovascular damage, Flareups

Diseases that co-exists " fibromyalgia

Started by ajcb bella in General. Last reply by Charolett on Monday. 2 Replies

was wondering how many if any have fibromyalgia. My mam has had fibromyalgia since she was 23 years old. She suffers with pain and sweats. She also has diabetes.That is something I don't have. Mam seems to suffer more with cold hands than hot.Is the…Continue

prostaglandin and histamine and why blocking them can cause less flares

Started by Will Prowse in General. Last reply by Ocker Aug 21. 1 Reply

I have been seeing a lot of posts talking about how NSAIDS/antihistmains causing less flaring for people on this em forum and others. I think i found out why. I was looking over some studies on chronic inflammation and found that…Continue

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Latest Activity


Moderator
Jules G replied to ajcb bella's discussion At what age?
"Don't know if you have caught up with new member Egmoore77's story and post yesterday,…"
4 hours ago
ajcb bella posted a discussion

At what age?

I became very frustrated after seeming a dermatologist yesterday. Only positive in her words she…See More
9 hours ago
Grammy replied to NolaSue's discussion Anyone have issues with dry eyes?
"Hi Everyone, I also have very dry and red eyes. My doctor told me to use eye drops as often as I…"
12 hours ago
Grammy replied to rondp43's discussion Breakthrough with Magnesium
"Dear rondp43, Thank you so much for your post on magnesium. I also have been taking magnesium for a…"
12 hours ago
Egmoore77 posted a discussion

Need help so that I can help my 5 year old

First, thanks for adding me to the group.  Here is a little background for out story.  My daughter,…See More
yesterday
Beth L replied to NolaSue's discussion Anyone have issues with dry eyes?
"Hi, FYI Dry eyes and blurred vision can be a side effect of neurontin and gabapentin. Years ago…"
yesterday
Egmoore77 posted a status
"Thanks! I am really hoping that I can find some answers here. I will try to post some concerns while the kids are at school."
yesterday

Moderator
sheltielife left a comment for Egmoore77
"Hi Egmoore77, Welcome to this community. We are all a friendly lot here and try and help each other…"
yesterday

This Week on Living With Erythromelalgia 

1 Breakthrough with Magnesium

Breakthrough with Magnesium

Posted by rondp43 on August 25, 2015

2 Can repeated flareups cause permanent neurovascular damage or hasten the progression of EM?

Can repeated flareups cause permanent neurovascular damage or hasten the progression of EM?

Posted by Beth L on August 23, 2015

3 Anyone have issues with dry eyes?

Anyone have issues with dry eyes?

Posted by NolaSue on March 9, 2014

4 At what age?

At what age?

Posted by ajcb bella on August 28, 2015

5 Not sure if I have erythromelagia

Not sure if I have erythromelagia

Posted by Joy bby on August 26, 2015

6 Diseases that co-exists " fibromyalgia

Diseases that co-exists " fibromyalgia

Posted by ajcb bella on July 12, 2015

7 Vibrating sensation in body

Vibrating sensation in body

Posted by Bluebell on August 25, 2015

8 Need help so that I can help my 5 year old

Need help so that I can help my 5 year old

Posted by Egmoore77 on August 27, 2015

 
 
 

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