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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.

Forum

Hello from my first summer with EM

Started by Flaming in New Member Introductions 2 hours ago. 0 Replies

Hi, everyone. I was diagnosed with EM about a month ago by my chronic pain doctor. I've had burning pain in my face (especially when prone) since last December and thought it was the result of a jaw infection. Not so simple. I've also been feeling…Continue

Can Erythromelalgia Go Away?

Started by Brooke Price in General. Last reply by sheltielife yesterday. 5 Replies

So I have primary erythromelalgia and have had it since I was 9 (I'm 14 now). I have my EM in both my hands and feet. I'm on a pretty good treatment with a 10% capsaicin treatment so I only have a large flare once a year. (I get smaller flares when…Continue

Are your EM flares worse in Winter?

Started by Nel in General. Last reply by Brooke Price yesterday. 27 Replies

I had the most frustrating visit to hospital today. I have long understood that there is only one set of EM experts in England and they are at a Dermatology Raynauds clinic in one of our major London hospitals. After seeing the consultant I was sent…Continue

Calcium Supplements

Started by nwgirl in General. Last reply by nwgirl on Saturday. 5 Replies

Hi all - I've been trying to find information regarding the effects of calcium supplements on erythromelalgia - good, bad, or neutral. I haven't had much luck. The RDA of calcium is 1000+ mg depending on age and gender which means that many people…Continue

Pins and needles

Started by Jilly in General. Last reply by Jilly on Friday. 6 Replies

Does anyone else get strange pins and needles in your feet legs and hands ?

Dilantin

Started by Shih tzu Mom in General. Last reply by Jules G on Friday. 1 Reply

Greetings! Just checking in with all my fellow EM sufferers to see if anyone has been prescribed the medication, Dilantin? If so, how did it work out for you? Were there any side effects? I had an appointment with a Neurologist at Virginia Mason…Continue

Medication

Started by Jilly in Symptoms and Their Management. Last reply by Jilly on Friday. 11 Replies

Hi my Gabapentin has been increasing slowly now at 3800mg and have found intense hunger does anyone know if that is a side effect ? Thanks

Blogs

Started by Jules G in General on Thursday. 0 Replies

The Blog facility is now closed to new posts.Anything you have previously written as a Blog is still accessible to you via your 'my page'.Please use the General Discussion category for anything you would previously have posted as a Blog.Thank you.…Continue

Tags: Blogs

HOW TO: Status, Discussion & Comment Wall Posts

Started by Jules G in General on Thursday. 0 Replies

We have lots of new members here on EM so a quick reminder of the main locations for posts, which types will be seen by the most people and how to generate the most interest and responses to questions:STATUS:  This is a short comment that you can…Continue

Tags: status, wall, post, discussion, comment

My new Therapeutic ice machine

Started by Jon_sparky in General. Last reply by Jon_sparky on Wednesday. 6 Replies

Hi,I received my DeRoyal ice machine today! I bought it used on eBay for $40.00. Works great, pumps chilled water and circulates it through a flat pad, it is temperature controlled, so it keeps a constant temperature of about 48 degrees.You just…Continue

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Latest Activity

Flaming posted a discussion

Hello from my first summer with EM

Hi, everyone. I was diagnosed with EM about a month ago by my chronic pain doctor. I've had burning…See More
2 hours ago
Lilbit61 commented on Lilbit61's blog post Help please? Newly diagnosed
"Hi Jules, yes, I reposted on the discussion.  Thanks again!  Yes, I just checked out the…"
14 hours ago

Moderator
sheltielife replied to Brooke Price's discussion Can Erythromelalgia Go Away?
"Well that sounds optimistic that you are the first one in your family to have EM, maybe many…"
yesterday
Brooke Price replied to Nel's discussion Are your EM flares worse in Winter?
"I usually get my bigger flares near the fall (November area), but temperature changes can give me…"
yesterday
Brooke Price replied to Brooke Price's discussion Can Erythromelalgia Go Away?
"Sheltielife I am the first person in my family to have erythromelalgia. For both of you who…"
yesterday

Moderator
sheltielife replied to Brooke Price's discussion Can Erythromelalgia Go Away?
"Hi Brooke, I totally agree with what Jules said about the research going on into genetic diseases.…"
yesterday

Moderator
Jules G replied to Brooke Price's discussion Can Erythromelalgia Go Away?
"Hi there Brooke, I am so sorry you're having to deal with EM at such a young age BUT I take a…"
yesterday
Brooke Price replied to Brooke Price's discussion Can Erythromelalgia Go Away?
"Also can EM get passed on to my kids because if it could I would plan not to have kids and just…"
Sunday

This Week on Living With Erythromelalgia 

1 Pins and needles

Pins and needles

Posted by Jilly on June 26, 2015

2 Calcium Supplements

Calcium Supplements

Posted by nwgirl on June 25, 2015

3 Can Erythromelalgia Go Away?

Can Erythromelalgia Go Away?

Posted by Brooke Price on June 27, 2015

4 Dilantin

Dilantin

Posted by Shih tzu Mom on June 25, 2015

5 Medication

Medication

Posted by Jilly on May 20, 2015

6 Are your EM flares worse in Winter?

Are your EM flares worse in Winter?

Posted by Nel on June 15, 2015

7 My new Therapeutic ice machine

My new Therapeutic ice machine

Posted by Jon_sparky on June 23, 2015

8 HOW TO: Status, Discussion & Comment Wall Posts

HOW TO: Status, Discussion & Comment Wall Posts

Posted by Jules G on June 25, 2015

 
 
 

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