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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
I can't find any research done in the last 5 or more years that is on NON-inherited EM. Only approximately 30% of EM patients have the inherited form. Yet once a genetic mutation for EM was found, it seems all non-inherited EM research dried up.…Continue
This discussion was initially to be about climate and how it affects our Em , but temperature is such an integral part our our lives and so strongly dictates the way in which we live it became obvious the thread needed to be called something else .…Continue
Hi, my name is Jenn. I'm 23 years old and was recently diagnosed with EM. This past November, I was given Avelox ( A fluoroquinolone drug ) for a sinus infection. I have suffered severe adverse reactions from this drug. It started out initially with…Continue
After being away from the site for such an extended time ,I have realised the dedication and patience of the moderator team is quite extraordinary. They have continued to research ,support and answer all sorts of questions .Some of those questions…Continue
BLOWING UP CONTINUALLY. NO PAIN RELIEF. LOST THE WILL TO LIVE. SURVIVING IN BED WITH 63 DEGREE AIR CONDITDIONING. BARELY CAN GET TO BATHROOM. FABRICS CAUSE PAIN. TOTAL BODY TEMPERATURE DISREGULATION. NO FUTURE.DOCTORS NO NOTHING, JUST HOW TO…Continue
Never had It before and now I'm getting a lot of it and associating it with the daily facial flares. Can be a roar, can be a whine and often I only realise it was there when it suddenly switches off.Does anyone else get this?Continue
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