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Preparing For An Appointment With A New Doctor
Posted by Ben Munoz on April 27, 2013 at 6:34am 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
ContinueApril 2013 Community Newsletter
Posted by Ben Munoz on April 26, 2013 at 10:27am 0 Comments 0 Likes
Dear Living With Erythromelalgia Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to…
ContinueClinicalTrials.gov Studies
Evaluation Of The Efficacy And Safety Of Single Doses Of PF-05089771 In Patients With Primary (Inherited) Erythromelalgia
Condition: Inherited ErythromelalgiaInterventions: Drug: PF-05089771; Drug: Placebo
Sponsors: Pfizer; Pfizer
Recruiting - verified May 2013
What is Erythromelalgia (EM) ?
Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Forum
Blisters?
Started by Heather in General. Last reply by bella 2 hours ago. 3 Replies 0 Likes
Hi everyone! I'm new to this group and haven't googled EM for years till last night. So pleased to see so much more information out there and to find a support group! Thanks for letting me join.One question I have for you is: is EM ever associated…Continue
How Frequent Are Your EM Flares?
Started by Ellie in General. Last reply by Mercyanew 13 hours ago. 18 Replies 1 Like
This is a question of general curiosity that has not been answered for me by the scientific literature. I know that the frequency of flares for people can range from only a few flares a month to being in constant flare. So, in your day-to-day…Continue
Intrathecal Pump. IVIG. or Plasmapheresis
Started by bella in General 14 hours ago. 0 Replies 0 Likes
Hi Everyone,I am new to this so please forgive me if I am posting this in the wrong section.I am 19 and have had EM since I was 12. It was out of control and I was eventually able to leave the hospital after learning how to walk again. They would…Continue
What do you like to do to occupy your time with?
Started by Ben Munoz in General. Last reply by lindaizias yesterday. 8 Replies 0 Likes
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
Hot Showers A Big Problem
Started by twinklee in General. Last reply by lindaizias on Tuesday. 14 Replies 1 Like
Anyone figured out a way to take a hot shower without burning up your feet?Continue
Linked In group
Started by Dave in General on Monday. 0 Replies 0 Likes
I noticed there is a Living w/ EM group in LinkedIn. I just made a join request. Who started it?DaveContinue
Latest Activity
This Week on Living With Erythromelalgia
| 1 |
What do you like to do to occupy your time with?Posted by Ben Munoz on May 20, 2013 |
| 2 |
How Frequent Are Your EM Flares?Posted by Ellie on May 3, 2013 |
| 3 |
Blisters?Posted by Heather on May 19, 2013 |
| 4 |
Hot Showers A Big ProblemPosted by twinklee on May 5, 2013 |
| 5 |
Just wondering?Posted by Dominique on May 14, 2013 |
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"Thank you for the Welcome. I am in the process of being diagnosed with Scleroderma,..."
“Thank you for the Welcome. I am in the process of being diagnosed with Scleroderma, Erythromelalgia, and Raynaud’s. Scary place to be. It is nice to be able to read about other people and how they are dealing.”- a member from Living With Erythromelalgia - Online Support Group
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