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Today is my first day with the group and I want to thank those of you who have already made me feel welcomed. I joined the group looking for support and possibly answers. I was wondering if anyone has been to the Mayo…Continue
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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
They say laughter is the best medicine :)We found this satirical caption quite amusing. Amidst our pain and tears ,its certainly good to be able to laugh and smile once in a while. Laughter also boosts our endorphins. Beta-endorphins are…Continue
Any chronic illness disrupts so called ' normal' living, so its hardly surprising that psychologists have found many chronic pain sufferers can experience feelings of:Shame and embarrassment.Worry about being a burden or “dependent.”Fear of…Continue
Finally, the day is near. I saw him last November, but while he attended to my migraine pain problems the pain specialist sort of seemed to shrug of the EM pain. I've had this EM pain since 2002 (I'm pretty sure that was the year). It was diagnosed…Continue
I always say that I can cope with anything during the day if I can only get some sleep at night but in Winter I flare within an hour and a quarter of falling asleep and there is nothing for it but to get up, head downstairs to the freezing kitchen…Continue
Hi everyone,Has anyone experenced vibration i.e power tools, lawnmowers, mixers etc. causing flares of EM? I have worked in construction for years, when I would use any vibrating tool like a jackhammer or hammer drill, the vibration would set off…Continue
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Posted by Dreamline on March 26, 2015