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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.


What alleviates EM itching?

Started by Beth L in Symptoms and Their Management 7 hours ago. 0 Replies

The past few weeks I've had more and more itching. I assumed it was just dry skin, but then I remembered EM can cause itching too. If anyone is using something that alleviates EM itching, prescription or otherwise, I'd appreciate hearing from…Continue

Tags: Itching


Started by Melodie in General. Last reply by Carine 14 hours ago. 13 Replies

Is somobody Heard about the new treatment with Topically applied MIDODRINE 0,2%.Read T.E.A erythromelalgia Association on novembre 2015Tell me Please if you havé information concernant this médecine. Tank youMelodieContinue

Questions about hand EM

Started by Beth L in Symptoms and Their Management. Last reply by erikdc yesterday. 13 Replies

Does anyone will get the following symptoms: burning under the fingernails, extremely pressure-sensitive finger tips that turn whitish or bluish when subjected to pressure-intensive activities like flossing, brushing one's teeth, gripping items that…Continue

Tags: EM, Hand

Hand EM symptoms, polycythemia & thrombocythemia

Started by Beth L in General. Last reply by graciousgeekgirl yesterday. 15 Replies

It's possible the lack of oxygen or cyanosis in my nailbeds and fingertips is related to polycythemia vera or thrombocythemia. I am seeing a hematologist this week. Perhaps I will get some answers. Thank you sheltie and Eric for getting back to me.…Continue

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Latest Activity

Beth L posted a discussion

What alleviates EM itching?

The past few weeks I've had more and more itching. I assumed it was just dry skin, but then I…See More
7 hours ago
Carine replied to Melodie's discussion Midodrine
"My feet are yellow but seems to be less painful !"
14 hours ago
Beth L replied to Melodie's discussion Midodrine
"If you Google "compounding pharmacy" and the name of your city or state, you will get a…"
22 hours ago
sharitypopo replied to Melodie's discussion Midodrine
"Do I need a prescription for the cream??? I hate winter, I can't sleep without my fan :/ and…"
22 hours ago

This Week on Living With Erythromelalgia 

1 Hand EM symptoms, polycythemia &  thrombocythemia

Hand EM symptoms, polycythemia & thrombocythemia

Posted by Beth L on November 22, 2015

2 Redness


Posted by Mouse on November 4, 2015

3 Questions about hand EM

Questions about hand EM

Posted by Beth L on November 19, 2015

4 Midodrine


Posted by Melodie on November 14, 2015

5 ? Treating Doctors in Toronto ON Canada

? Treating Doctors in Toronto ON Canada

Posted by Dragonfly on May 17, 2014

6 PAIN MANAGEMENT - Who goes to pain managment here?

PAIN MANAGEMENT - Who goes to pain managment here?

Posted by jimm on July 24, 2014

7 What alleviates EM itching?

What alleviates EM itching?

Posted by Beth L on December 1, 2015


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