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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
Thinking of brain fog from Pregabalin, constipation from pain killers, rashes etc. I react so badly that I won't even try new medication. I have decided it is better to just manage the flares; at least my head stays clear.Do you think it is worth…Continue
Hi Everyone,I have been dealing with EM for over a year. I have seen numerous specialists in the attempt to get a diagnosis and EM was finally confirmed (based on reported symptoms and photos) earlier this month. It was really quite surprising how…Continue
Hi Everyone, I was interested to read that the occurence of EM is more prevalent in Norway than anywhere else.im wondering why this is the case. Of note despite working for many doctors in NZ none of them have EVER heard of it. I have 3 sisters in…Continue
New to this. As I wrote beforeHad this problem for 3 yrsStarted of as pain under small toeMoved to both feetDoc thought it was a neuroma3 yr down the line , my feet get cold , thenAll of a sudden my toes go red and stingyThey cool down after 10…Continue
apart from another lady on here who i know of. does anyone else know of links through EM and jerking muscles. my body most days different limbs at different times will twitch.maybe my arm leg then head will be in a order of twitches. i had EEG just…Continue
Started by MeowMachine in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by MeowMachine May 20. 3 Replies 0 Likes
Hellooo :) Just thought I would make a post asking if anyone was aware of a doc that might be knowledgeable about EM - in Melbourne, Australia. Continue
Started by tpperez in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by thisgirlisonfire May 18. 10 Replies 0 Likes
My daughter is 17. she has been battling thoracic outlet syndrom for a few years now. she had surgery on her right side inb febuary. shortly befor her surgery she started to have really bad nerve pain and symptoms in her hand. also started turning…Continue
Hi, I've joined this group as i am having problems with my hands and feet and the doctors don't have a clue what it is and was looking for some advice. I may talk alot about my migraines too but i think they may be linked in me.In spring 2014 one…Continue
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