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May 2012 LivingWithErythromelalgia Community Newsletter

Posted by Ben Munoz on May 25, 2012 at 10:30am 0 Comments

Dear Friends and Family of LivingwithErythromelalgia,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our…

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OUR ONLINE PRESENCE IS GROWING!!!

Posted by Armando Abrero on May 22, 2012 at 6:55am 0 Comments

OUR ONLINE PRESENCE IS GROWING!!!

Check out this link to view Ben's Friends FB-Twitter Milestone.…

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Forum

Low body temperature?

Started by LibbyK in General 1 minute ago. 0 Replies

My regular (oral) body temperature is usually between 97.2 and 97.6 Fahrenheit.  Does anyone else out there in the EM world have a low body temp?  Just a stab in the dark really, but it doesn't seem wholly unbelievable that a low body temp might…Continue

Antihistamines helpful?

Started by LibbyK in General. Last reply by LibbyK 7 minutes ago. 2 Replies

So, this morning I had a sudden allergic episode (sneezing, itchy throat, swelling nasal passages, runny nose) - I still don't know what caused it.  So I took a Benadryl.  This may be a coincidence, but my toes didn't flare up when I went to run…Continue

healing rates of injuries on em affected limbs

Started by Will Prowse in General. Last reply by Jim Weed Alaska 13 minutes ago. 13 Replies

i was wondering if anyone has broken a bone or tore a tendon or ligament in a foot affected with em. Did it heal? how about other wounds on your feet? i love bicycling to make my em better, but now that i think about it, if i fell, im scared i would…Continue

Severe itching

Started by lauraflora1 in General. Last reply by lauraflora1 7 hours ago. 2 Replies

I was just wondering if anybody else suffers from severe itching. I have noticed that when I get slightly warm I have been getting horrendous itching on my neck and chest area. It is so bad that i end up clawing at it. Cooling it with cold water…Continue

sympathetic block

Started by joyfuljenn in General. Last reply by lizzi 8 hours ago. 26 Replies

Has anyone had a lumbar sympathetic block done? Pros? Cons?Continue

EM specialist Kings College hospital London..?

Started by lauraflora1 in General. Last reply by mnp 8 hours ago. 30 Replies

After waiting and waiting for my doctor and pain management specialist to find an EM specialist in the UK I received a letter in the post. I have been given an appointment at Kings College hospital in London, with a member of the neurological team…Continue

Latest Activity

LibbyK posted a discussion

Low body temperature?

My regular (oral) body temperature is usually between 97.2 and 97.6 Fahrenheit.  Does anyone else…See More
1 minute ago
LibbyK replied to LibbyK's discussion Antihistamines helpful?
"Thank you, lauraflora!  I looked through the discussion titles for something like this and…"
7 minutes ago

Jim Weed Alaska just added their location.
(via Member Map)

10 minutes ago
Jim Weed Alaska replied to Will Prowse's discussion healing rates of injuries on em affected limbs
"I like your theory Lizzi.  Have never heard anyone voice (or write) the why, although have…"
13 minutes ago
lizzi replied to Will Prowse's discussion healing rates of injuries on em affected limbs
"Here is my theory of how EM can be caused by injuries. An injury causes the release of numerous…"
4 hours ago
Farmer Nay left a comment for lauraflora1
"I have had Raynaud's for over 5 years. Started to have some skin changes in 2009. Before…"
5 hours ago
Farmer Nay and lauraflora1 are now friends
5 hours ago

Moderator
lauraflora1 left a comment for Farmer Nay
"I have the feeling of pins and needles most of the time when not in total flares. The gapapentin…"
7 hours ago

Top Content 

1 sympathetic block

sympathetic block

Posted by joyfuljenn on May 12, 2012

2 Worsening symptoms

Worsening symptoms

Posted by SassiKerri on May 23, 2012

3 What Are Your Top 3 Ways In Dealing With Flare-Ups???

What Are Your Top 3 Ways In Dealing With Flare-Ups???

Posted by scanfield1 on May 16, 2012

4 Erythromelagia in face and ears

Erythromelagia in face and ears

Posted by cutegirl on April 30, 2012

5 healing rates of injuries on em affected limbs

healing rates of injuries on em affected limbs

Posted by Will Prowse on May 23, 2012

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