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Blog Posts

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:08am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+


ClinicalTrials.gov Studies

Community Moderators






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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.


Trying to nail down my situation and explain to my gp and specialist hand doctor

Started by fattyJr in General. Last reply by fattyJr Dec 11. 25 Replies

I don't know really where to start, but you gotta start somewhere.  So i'll start from the beginningI suffered a Road traffic accident in 2001 while riding my motorcycle to work.  I was basicly fine ( as we thought at the time) apart from a broken…Continue

Antihistamine therapy in the management of EM (revisiting the hypothesis)

Started by mads in General. Last reply by Dragica Dec 10. 9 Replies

 Several members have asked the moderator team about antihistamines. Antihistamines are often overlooked in the treatment of EM, but these drugs have potent vascular effects. The Erythromelalgia Association's (TEA) 2008 Survey indicates that…Continue

Coping with Christmas!

Started by mads in General. Last reply by Alina Delp 5 hours ago. 17 Replies

Hi Guys,With Christmas upon us I started thinking about how we all cope. Like most of the EM community, I sort of struggle through the rest of the year by isolating myself from all social activities, heavy medication, trying to minimise triggers and…Continue

Do I have EM? I hope not!!!

Started by Sky in General. Last reply by Alina Delp Nov 30. 10 Replies

This sounds awful. And it sounds hopeless. I can only hope that I do not belong here, no offense. As much as I complain about my issues, they dont compare to some of yours. My feet are never red. They never get swollen. I don't lose sleep because of…Continue

anyone with rheumatoid arthritis and EM?

Started by Wen in General. Last reply by blue yesterday. 11 Replies

Hi, I am new here, but I have a couple questions that I want to ask everyone.First off, I have rheumatoid arthritis and it's been a few years since I was diagnoised with it. My condition was under control until two years ago I started to experience…Continue

Medication induced EM???

Started by Mexicanrose in General. Last reply by Mexicanrose Dec 1. 12 Replies

My family doctor believes that my burning feet & ankles are caused by the Amlodipine I'm taking.I have had this problem since last January. I'll give you some history. About 15months ago, I was taking 10mgs of Amlodipine..then my ankles &…Continue

Tags: EM, induced, Medicine

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Latest Activity

Dragica replied to tillyp's discussion blood sweat and toenails
" "
3 hours ago
Dragica replied to tillyp's discussion blood sweat and toenails
"Hi "yucky feet" folks. It's some how weirdly comforting to know that one isn't…"
4 hours ago

Alina Delp replied to Witsend's discussion Disability VS Social Security
" Hello Witsend. I am in the appeals process with social security. They turned down my original…"
5 hours ago

Alina Delp replied to mads's discussion Virtual Christmas Party: 7 days to go!
" If I could have a drink it would be champagne with a splash of Chambord . Food???? Captain…"
5 hours ago

This Week on Living With Erythromelalgia 

1 Coping with Christmas!

Coping with Christmas!

Posted by mads on December 12, 2014

2 blood sweat and toenails

blood sweat and toenails

Posted by tillyp on September 4, 2012

3 anyone with rheumatoid arthritis and EM?

anyone with rheumatoid arthritis and EM?

Posted by Wen on May 29, 2012

4 Disability VS Social Security

Disability VS Social Security

Posted by Witsend on December 15, 2014

5 SPOTLIGHT ON:   Living with Erythromelalgia and Raynauds

SPOTLIGHT ON: Living with Erythromelalgia and Raynauds

Posted by mads on June 21, 2014


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