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If your family has been affected by Erythromelalgia, consider Living With Erythromelalgia your second home.
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We are patients living with erythromelalgia, here for your support.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…Continue
Dear Living With Erythromelalgia Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to…Continue
Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Hi everyone! I'm new to this group and haven't googled EM for years till last night. So pleased to see so much more information out there and to find a support group! Thanks for letting me join.One question I have for you is: is EM ever associated…Continue
This is a question of general curiosity that has not been answered for me by the scientific literature. I know that the frequency of flares for people can range from only a few flares a month to being in constant flare. So, in your day-to-day…Continue
Hi Everyone,I am new to this so please forgive me if I am posting this in the wrong section.I am 19 and have had EM since I was 12. It was out of control and I was eventually able to leave the hospital after learning how to walk again. They would…Continue
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
Posted by Ben Munoz on May 20, 2013
Posted by Ellie on May 3, 2013
Posted by Heather on May 19, 2013
Posted by twinklee on May 5, 2013
Posted by Dominique on May 14, 2013
This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!
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