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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
Hello!My dermatologist, who I work for from home, wants to experiment by injecting Botox in my toes & feet because they have gotten so bad. I'm kind of nervous about trying it in case it makes me worse. I guess it's to deaden the nerves. I don't…Continue
Started by mads in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Carine 13 hours ago. 96 Replies 5 Likes
Hi Guys,I know there is a category for recommended Dr/Specialists for Em'ers but frankly it seems lost . We all desperately need to know how to find EM aware /proactive medics . We are, therefore, compiling a comprehensive international list, which…Continue
Hi guys, I am new to the group I have SFN and Erythromealgia all started over two years ago 'nightmare' I have seen every doctor you can think of and only until quite recently they thought I was crazy and stressed as all my bloods and exams are…Continue
http://www.chousky.com/Home.html Apparently there are these centers in North America that claim to treat Neuropathy with LLLT, [Low Level Light Treatment] a non invasive, no medication procedure.Anyone…Continue
Hello - I'm happy to have found this forum. My son is 13 years old and was diagnosed with EM yesterday by a pediatric dermatologist. This is going to be a long post so...forgive me in advance...lol! About 5 months ago he started having episodes…Continue
Hi everybody;I'm french and EM sufferer for 8 months. It was severe, and quick progressive. I have tested lyrica and gabapentin with a very little effect and many side effects.In the hsospital, they give me tramadol : nothing, and amitryptiline :…Continue
I have had this affliction for seven months. When lowered, my foot (right only) gets red, blotchy, hot, and painful. When raised to chest level, it quickly goes to normal color, less painful. Vascular test showed normal blood flow. Neurology test…Continue
I have had EM for 12 years in feet and lower legs. I have been homebound for days on end. I am truly a strong person. I now have it in my hands and this is so hard for me to deal with. I just found out I am a Diabetic (started while using…Continue
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YOUR EM COMMUNITY NEEDS YOU! Dr Database: What is the the name of the Dr/specialist who diagnosed your EM and/or treating you?
Posted by mads on March 20, 2014
Posted by Miss Patti on September 28, 2015
Posted by Beth L on September 15, 2015
Posted by Micky R on July 11, 2015