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Xenon Reply

Posted by Davipot on September 30, 2014 at 7:59pm 0 Comments

Hi Folks,

I have been low key for a while as I haven’t had anything else to add, Emily has started a raw Vegan diet and is using Organic…


ClinicalTrials.gov Studies

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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.



Started by Danni M in General. Last reply by Danni M Oct 7. 16 Replies

Would anyone be willing to share what meds you take,what has worked. I was having success with lyrica 25mg 4x per day but by doc told my to increase. I did and what a mistake. So much more burning. I tried to back down but was worse. I'm stuck. Now…Continue

Ketamine Infusion

Started by Tizzy in General. Last reply by mads on Monday. 35 Replies

Hello, to those who have not tried a ketamine infusion for pain. I am currently an in-patient at the St Vincents pain clinic after a nasty couple of weeks. My EM seems to have progressed in severity and into a more extensive distribution. Don't know…Continue

Foods and Food Additives that may cause FLARES in EM

Started by frostbite in General. Last reply by frostbite Oct 14. 19 Replies

Burning feet is characterized by severe aching, stinging and burning sensation of the feet. This may also be accompanied by sweating, swelling and inflammation of the affected foot/feet. While usually the burning sensation is limited to the soles of…Continue

HOTDESK : The latest in pain research news - September 2014

Started by mads in General. Last reply by MtnGypsyGirl Oct 14. 15 Replies

Dear Members,Just to inform you that we are starting a new feature called 'Hotdesk'. From October 1st we are going to be bringing you a monthly update of 'whats hot 'and 'whats not' in terms of the most interesting, informative and bizarre pain…Continue

Article about Understanding Someone with Chronic Pain

Started by lisers in General. Last reply by Pesto Oct 7. 10 Replies

http://www.wikihow.com/Understand-Someone-With-Chronic-PainThis is an excellent article!  I thought I'd share this because as dizzy posted one doctor told her…Continue

Temper, temper...(Revisted)

Started by Lauren in General. Last reply by Nel yesterday. 36 Replies

My mums starting to get on my case a bit about this, (A LOT)...Does anyone with EM feel there reaaaally short tempered with life/people? Even more so during a flare?. As I seem to be and even the smallest of situations frustrate me, I don't mean to…Continue

Tags: temper, Temper

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Latest Activity

blue replied to Lynee's discussion How to deal with Anxiety and EM ??
"Hi jimm,  I think you meant to write 0.25 mgs xanax.  blue"
13 hours ago

Alina Delp left a comment for Moongirl
"I am so sorry it took me so long to respond! I see you sent this almost 10 days ago.you must have…"
20 hours ago

Alina Delp and Moongirl are now friends
20 hours ago
Ben84 updated their profile
23 hours ago

This Week on Living With Erythromelalgia 

1 Laurent85


Hemet, CA, United States

2 Tizzy


Queensland, Australia

3 Seattlegirl


Randle, WA, United States

4 scanfield1


Fishers, IN, United States

5 Nel


London, United Kingdom


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