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Blog Posts

Help at Specialty Clinic

Posted by Kerri on March 30, 2015 at 4:15pm 0 Comments

Today is my first day with the group and I want to thank those of you who have already made me feel welcomed. I joined the group looking for support and possibly answers. I was wondering if anyone has been to the Mayo…


ClinicalTrials.gov Studies

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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.


Peeling feet

Started by Roach131 in General. Last reply by Tarsius Mar 24. 37 Replies

Just wondering, along with the flares has anyone have a problem with their feet feeling like they are blistered and raw and also the skin is raw and some of it is peeling

Lets all smile:) What are the 'best' things about EM?

Started by mads in General. Last reply by Jeramie Gatchell on Sunday. 14 Replies

They say laughter is the best medicine :)We found this satirical caption quite amusing. Amidst our pain and tears ,its certainly good to be able to laugh and smile once in a while. Laughter also boosts our endorphins. Beta-endorphins are…Continue

Tags: medicine, best, EM, humour, laughter

Is EM a relationship buster?.

Started by mads in General. Last reply by mads Mar 22. 20 Replies

Any chronic illness disrupts so called ' normal' living, so its hardly surprising that psychologists have found many chronic pain sufferers can experience feelings of:Shame and embarrassment.Worry about being a burden or “dependent.”Fear of…Continue

Tags: dating, relationships

date for appointment with my pain specialist is on Wednesday

Started by blue in General. Last reply by Jon_sparky Mar 23. 18 Replies

Finally, the day is near. I saw him last November, but while he attended to my migraine pain problems the pain specialist sort of seemed to shrug of the EM pain. I've had this EM pain since 2002 (I'm pretty sure that was the year). It was diagnosed…Continue

Six nights in bed with a wine bottle cooler

Started by Nel in General. Last reply by madinvirginia Mar 22. 19 Replies

I always say that I can cope with anything during the day if I can only get some sleep at night but in Winter I flare within an hour and a quarter of falling asleep and there is nothing for it but to get up, head downstairs to the freezing kitchen…Continue

Vibration triggers EM flare

Started by Jon_sparky in General. Last reply by Jon_sparky 2 hours ago. 14 Replies

Hi everyone,Has anyone experenced vibration i.e power tools, lawnmowers, mixers etc. causing flares of EM? I have worked in construction for years, when I would use any vibrating tool like a jackhammer or hammer drill, the vibration would set off…Continue

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Latest Activity

jenl20102010 replied to jenl20102010's discussion Has anyone had symptoms come out after Surgery?
"Hi Audrieann My doctor was not referring to my blood pressure or pulse.  He was referring to…"
26 minutes ago
audrieann111 replied to audrieann111's discussion I just found this group and think I know whats wrong with me BUT...
"That makes sense Alina. When I tried the elevation and ice packs it was probably only for 10-15…"
1 hour ago
Jon_sparky replied to Jon_sparky's discussion Vibration triggers EM flare
"Yes, that is how I have always experienced it. I think the vibration does something with the…"
2 hours ago

mads left a comment for Kerri
"Kerri, if you find Gabapentin side effects bit difficult to manage, have you tried pregablin.…"
2 hours ago

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