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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
Hi, everyone. I was diagnosed with EM about a month ago by my chronic pain doctor. I've had burning pain in my face (especially when prone) since last December and thought it was the result of a jaw infection. Not so simple. I've also been feeling…Continue
So I have primary erythromelalgia and have had it since I was 9 (I'm 14 now). I have my EM in both my hands and feet. I'm on a pretty good treatment with a 10% capsaicin treatment so I only have a large flare once a year. (I get smaller flares when…Continue
I had the most frustrating visit to hospital today. I have long understood that there is only one set of EM experts in England and they are at a Dermatology Raynauds clinic in one of our major London hospitals. After seeing the consultant I was sent…Continue
Hi all - I've been trying to find information regarding the effects of calcium supplements on erythromelalgia - good, bad, or neutral. I haven't had much luck. The RDA of calcium is 1000+ mg depending on age and gender which means that many people…Continue
Greetings! Just checking in with all my fellow EM sufferers to see if anyone has been prescribed the medication, Dilantin? If so, how did it work out for you? Were there any side effects? I had an appointment with a Neurologist at Virginia Mason…Continue
The Blog facility is now closed to new posts.Anything you have previously written as a Blog is still accessible to you via your 'my page'.Please use the General Discussion category for anything you would previously have posted as a Blog.Thank you.…Continue
We have lots of new members here on EM so a quick reminder of the main locations for posts, which types will be seen by the most people and how to generate the most interest and responses to questions:STATUS: This is a short comment that you can…Continue
Hi,I received my DeRoyal ice machine today! I bought it used on eBay for $40.00. Works great, pumps chilled water and circulates it through a flat pad, it is temperature controlled, so it keeps a constant temperature of about 48 degrees.You just…Continue
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