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If your family has been affected by Erythromelalgia, consider Living With Erythromelalgia your second home.
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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
I live in Palmdale, CA. It is the High Desert. Today its 98 degrees and not too humid. Between the Raynaud's flaring and the EM flaring I am in agony all the time. In the house and out of the house.My (separated) husband just spent $5200.00 adding a…Continue
Hi everyone - I've been off line for a while...but I'm back! I went to Thailand recently and it was hot, and ironically my feet did not flare up as much as they do in cold weather (like right now in South Australia)... I don't really understand…Continue
Hello All!I'm new here and newly diagnosed with EM (still trying to figure out what else is going on). I've been suffering from severe fatigue, tingling, numbness (in arms, lower legs, hands, and feet), vertical ridges on fingernails, swollen lips,…Continue
Hi EveryoneI hope you are all well, or as well as can be at least.I got checked into hospital yesterday - over the past few weeks, every knuckle in my hands has become red, swollen and really sensitive, plus all these blisters appeared...about 25-30…Continue
I've been searching for help for a long time, over 30 years at least. About 2 months ago I was prescribed pentoxifylline (trental) as a long shot for the erythromelalgia, which has been getting progressively worse, and had been changing even more…Continue
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