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If your family has been affected by Erythromelalgia, consider Living With Erythromelalgia your second home.
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Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.
Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.
Thank you for the warm welcome. I'm grateful to have this community to share with and learn from. I will share my story with you. I am new to EM. I diagnosed myself from searching on the internet about 6-7 weeks ago, and then went to see my…Continue
Hi all, I just came across Peltier coolers or heat pumps as a technology that might help EM sufferers if used in shoes. Low and behold there is a patent on them and a research project at ETH Zurich. Unfortunately I haven't found any commercial…Continue
HiI have been getting fluid in my ankles and feelings of fluid falling down my legs when I get up in the morning.All of this I assume is from Venous Insufficiency in my deep veins of my legs.I also get the burning feet episodes and muscle…Continue
At my request, my neurologist prescribed me Venlafaxine. I have taken 75mg for the first week and now up to the recommended 150mg. I saw a change withing 2 days when my current flare came to almost an abrupt stop. Since, I have seen an amazing…Continue
I was excited to see another pic of red ears! :-) I went for a long time not knowing what was going on with me. At first I thought it was Raynaud's. My dermatologist told me it was an autonomic problem. My neurologist has lots of ideas what my…Continue
Hi, My my name is Jen and I have recently been diagnosed with EM. I have a history of Raynouds and other than that was healthy. I recently had major surgery and than everything went down hill from there. My legs, toes, feet and hands…Continue
They say laughter is the best medicine :)We found this satirical caption quite amusing. Amidst our pain and tears ,its certainly good to be able to laugh and smile once in a while. Laughter also boosts our endorphins. Beta-endorphins are…Continue
I was asking on another EM Group that I belong too about these tiny pinpoint red dots that have been appearing on my legs, mostly in the areas where I get flares. Interesting enough, I have found out that there are other EM sufferers who get this…Continue
Hi Everyone,I just joined this group because I'm struggling with a chronic case of chilblains that hasn't been responding very well to typical forms of treatment. I suspect I may have erythromelalgia, but I have not been diagnosed. I want to open a…Continue
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Posted by snowshoe03 on April 18, 2015
Posted by jenl20102010 on April 16, 2015
Posted by Miss Patti on April 17, 2015
Posted by Ocker on April 16, 2015
Posted by jenl20102010 on April 18, 2015
We are fortunate to have here a first hand report of an EM patient's experience of a Spinal Cord Stimulator trial.
Posted by Nel on April 16, 2015
Posted by Jon_sparky on April 20, 2015
Posted by dazsa on April 16, 2015
Posted by mads on April 16, 2015
Posted by MeowMachine on April 17, 2015