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Blog Posts

Brimonidine

Posted by Göran on October 27, 2014 at 9:10am 4 Comments

Hello,

I have read about Brimonidine whick normally is used for Glaucoma.

Now I have heard that it works for the erythema (facial) i Rosacea.

Has anybody any experience for topical application in EM? 

ClinicalTrials.gov Studies

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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders.. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.

Forum

Ketamine Infusion

Started by Tizzy in General. Last reply by mads Oct 20. 35 Replies

Hello, to those who have not tried a ketamine infusion for pain. I am currently an in-patient at the St Vincents pain clinic after a nasty couple of weeks. My EM seems to have progressed in severity and into a more extensive distribution. Don't know…Continue

Foods and Food Additives that may cause FLARES in EM

Started by frostbite in General. Last reply by frostbite Oct 14. 19 Replies

Burning feet is characterized by severe aching, stinging and burning sensation of the feet. This may also be accompanied by sweating, swelling and inflammation of the affected foot/feet. While usually the burning sensation is limited to the soles of…Continue

HOTDESK : The latest in pain research news - September 2014

Started by mads in General. Last reply by MtnGypsyGirl Oct 14. 15 Replies

Dear Members,Just to inform you that we are starting a new feature called 'Hotdesk'. From October 1st we are going to be bringing you a monthly update of 'whats hot 'and 'whats not' in terms of the most interesting, informative and bizarre pain…Continue

Does the cold cause pain as well as the heat for you..??

Started by lauraflora1 in General. Last reply by Moongirl on Wednesday. 47 Replies

I am wondering if anybody else suffer from the cold weather as well as the HEAT..??? I have as much pain, numbness, burning and nerve pain when it's cold which then turn into a full on EM flare once I start to warm up again. Certain times of the…Continue

Cipro and other medication induced EM (e.g. Avelox, Levaquin, verapamil etc.)

Started by LizB in General. Last reply by pgny73 Oct 25. 10 Replies

Good Morning,I am not exactly sure what I am dealing with here...I took Cipro in March 2013 and November 2013. Only 4 pills total. Four. Freaking. Pills. I got shin splints that wouldn't go away, what I thought was plantar fasciitis, now realize was…Continue

Article about Understanding Someone with Chronic Pain

Started by lisers in General. Last reply by Pesto Oct 7. 10 Replies

http://www.wikihow.com/Understand-Someone-With-Chronic-PainThis is an excellent article!  I thought I'd share this because as dizzy posted one doctor told her…Continue

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Latest Activity

kylesmom posted a discussion

Primary Erythromelalgia

Had an appt with a pain specialist Monday. Had never heard of the disease but had done a little…See More
23 minutes ago
laceyann99 replied to laceyann99's discussion Treatment Options- Mirvaso
"Stopped using the Mirvaso, that was a total nightmare as far as the rebound redness. I am now…"
29 minutes ago

Moderator
mads posted discussions
1 hour ago

Moderator
Tizzy replied to Tizzy's discussion Psychology of chronic pain
13 hours ago

This Week on Living With Erythromelalgia 

1 Tizzy

Tizzy

Queensland, Australia

2 Göran

Göran

Växjö, Sweden

3 Laurent85

Laurent85

Hemet, CA, United States

4 kylesmom

kylesmom

Bridgewater, MA, United States

5 Danni M

Danni M

Hartington, NE, United States

 
 
 

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