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What is Erythromelalgia (EM) ?

Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Erythromelalgia may occur either as a primary or secondary disorder (i.e. a disorder in and of itself or a symptom of another condition). Secondary erythromelalgia can result from small fiber peripheral neuropathy of any cause, essential thrombocytosis (erythromelalgia can also develop in the presence of normal platelet counts in patients with myeloproliferative disorder), hypercholesterolemia, mushroom or mercury poisoning, and some autoimmune disorders. Primary erythromelalgia is caused by mutation of the voltage-gated sodium channel α-subunit gene SCN9A.



Started by Melodie in General. Last reply by Liz Sheppard 23 hours ago. 1 Reply

Bonjour, Les perfusions de lidocaine ont aggravé mes brulures ... Un ostéopathe qui "parle avec le cerveau" (!), méthode Atman, m'a dit que mes symptôme étaient dùs à une intoxication au mercure ????  Avez-vous entendu parler de cette possibilité…Continue

Good video on EM

Started by Jon_sparky in General. Last reply by Pilgrim on Friday. 1 Reply

Hi everyone,I found a good video on EM, might be something you could share with loved ones to explain the condition.http://youtu.be/FAYE99wTBZAContinue

Can there be pain elsewhere besides your hands and feet?

Started by Sharon Grace in Symptoms and Their Management. Last reply by Beth L on Wednesday. 13 Replies

About the same time I developed EM and burning hands and feet I also developed a burning spine.

Temper, temper...(Revisted)

Started by Lauren in Symptoms and Their Management. Last reply by Minor Jan 31. 39 Replies

My mums starting to get on my case a bit about this, (A LOT)...Does anyone with EM feel there reaaaally short tempered with life/people? Even more so during a flare?. As I seem to be and even the smallest of situations frustrate me, I don't mean to…Continue

Tags: temper, Temper

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Latest Activity

Davipot posted a blog post

LDN (Low Dose Naltrexone

Hi Everyone,It has been a while since I have been on the site. I have been keeping in touch via…See More
12 hours ago
Liz Sheppard replied to Melodie's discussion Mercury
"The Wikipedia article on EM says that Mercury poisoning is one of the causes. My own opinion is…"
23 hours ago
CMK updated their profile

Jules G left a comment for CMK
"Hello Carol, welcome to Living With EM.  Glad you found and joined us and hope that you find…"

This Week on Living With Erythromelalgia 

1 Can there be pain elsewhere besides your hands and feet?

Can there be pain elsewhere besides your hands and feet?

Posted by Sharon Grace on March 30, 2014

2 Mercury


Posted by Melodie on February 6, 2016

3 Good video on EM

Good video on EM

Posted by Jon_sparky on February 1, 2016


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