Living With Erythromelalgia - Online Support Group


Erythromelalgia (EM) is a rare neurovascular pain disorder that can cause redness and pain in all parts of the body, but most frequently the extremities, such as the hands and feet. It is characterized by intense burning pain, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature. The specific underlying cause of EM remains unknown.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them

New Member Introductions

New members, start your experience here. Introduce yourself and share your story. Let us welcome you

Erythromelalgia 101

(Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

General EM Discussion

Open discussion about EM

Symptoms and Their Management

Tell us all about your symptoms. What works and what doesn't?

Hand and Footwear

Because when you have EM, footwear really matters

Complementary Therapies

This is the place to discuss all the healing modalities that help you cope with EM and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.

Emotional Support

Having a rough time? We're here to listen and support.

Recommend a Doctor, Therapist, or Clinic (Positive

Want to recommend a doctor, therapist, or clinic? Positive review only, please.

What's New With You?

Tell us what you have been up to lately.

Positive Pick-Me-Ups

Share the things that brighten your days and make you smile.

Prayer and Healing Energy Requests

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.

Friends and Family of EM Patients

Discussion for friends and family of EM patients and how to best support patients.

Articles and Research

The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements.


Raising Awareness of Erythromelalgia. Events, local groups and more


Events of interest to EM Patients. Just email to have the staff add your event.


News from Bens Friends -

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.


FAQ about the Erythromelalgia Community

Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices