Blue fingers

I saw on the photos Scooby posted ago to of a blue finger. I’ve just had the same thing. Looks like a bruise but basically just a blue/purple finger. Does anyone know what causes that?

Hello Heidi. Do you have Raynauds? Before I had EM my fingers went from pink to white to purple to bright red. On another site I saw someone talking about Raynauds fingers going ‘black’ and thought good that my fingers don’t do that! but my Raynaud’s changed with the advent of EM. When they go white numb they shrink in girth and look wizened, then they swell to normal and go a dusky grey/blue after the purple, which makes younger family members go ‘ugh’ and me think of gangrene.

Thanks Nel, the blue/grey finger only was there for a couple of days. I don’t get raynauds with the whiteness. Another question I’ve read somewhere that somehow there is a connection between EM and sciatica… As I get sciatica and have done for years I am interested in how they are related. Anatomically my lower back is the cause of the sciatica. If anyone knows about this I’d be interested to hear.

Im afraid/glad that I don’t know anything about an association between sciatica and EM. It came up in a discussion a few years back http://www.livingwitherythromelalgia.org/forum/topics/sciatica-anyone

Hi Heidi,

Sorry for belated reply but ive been AWOL :)

Firstly,yes, there is a an association between musculoskeletal disease such as sciatica and EM. Secondary erythromelalgia often presents as a symptom of an underlying disease. Sciatica is not overly common but it does happen. What sciatica medications are you on ? EM can also be medication induced- something else to consider.Have you had any neurological examination, electromyography, neuroimaging ? Have you been diagnosed with small fiber neuropathy (SFN) , which is often found in sciatica sufferers.Whilst not a diagnostic there is some correlation between EM and SFN. Ateriovascular shunting also implicated (see attached). Good news is that by treating the underlying disorder in secondary EM, EM'ers can attain varying degrees of respite- some members have even had remission :)

The bluey finger you describe could be related to many things - not necessarily EM or Raynauds. Ive attached an article on livido for you to look at. If it has dissipated and hasnt returned then I wouldnt be too concerned at this stage. Might be you knocked yourself unknowningingly. I do that all the time ;). Just keep an eye on it. For a PTSD suffer ,the triggers of stress/anxiety certainly do not help with flaring. I find this a constant battle myself.

Can i just ask if your flares are bilateral? Also, are the flares induced by heat? Do you seek coolness to help alleviate?

I see you are on tricyclics. Tricyclics are one of the firstline therapies often prescribed to EM'ers- acting similarly to sodium channel blockers ie local anesthetic and antiarrhythmic agents. Great news that they are helping you. Are you taking any other medications for EM? Many members also take gabapentin (Neurotin) or pregablin (Lyrica) with some success.

Sciatica posts

http://www.livingwitherythromelalgia.org/forum/topics/help-muscle-p...

Have attached some information for you.

BTW: Have you contacted any of those NZ medics?

Big hug

x

120-LividoandEMplusphotos.pdf (613 KB)

Hi,

I used to have the occasional blue toe (not always the same one) but since I've started 25 mg of sertraline, pretty much everyday I get blue&warm feet (if I'm sat down for a long time). As soon as I move the blue colour goes away, does it sound like anything you know?

Hi Mads. Yes my symtoms are totally bilateral. I haven’t had any tests as I’ve only been diagnosed 3 weeks ago and don’t have health insurance. I’m really only learning now and suddenly so many things all start coming together… Eg I’ve had to sleep with my feet out of the blankets every night and just thought being menopausal I felt the heat! Sat in the sun on Saturday this week, (it’s Early autumn in NZ) and after ten minutes was so terribly hot it took all afternoon to cool down.



mads said:

Hi Heidi,

Sorry for belated reply but ive been AWOL :slight_smile:

Firstly,yes, there is a an association between musculoskeletal disease such as sciatica and EM. Secondary erythromelalgia often presents as a symptom of an underlying disease. Sciatica is not overly common but it does happen. What sciatica medications are you on ? EM can also be medication induced- something else to consider.Have you had any neurological examination, electromyography, neuroimaging ? Have you been diagnosed with small fiber neuropathy (SFN) , which is often found in sciatica sufferers.Whilst not a diagnostic there is some correlation between EM and SFN. Ateriovascular shunting also implicated (see attached). Good news is that by treating the underlying disorder in secondary EM, EM’ers can attain varying degrees of respite- some members have even had remission :slight_smile:

The bluey finger you describe could be related to many things - not necessarily EM or Raynauds. Ive attached an article on livido for you to look at. If it has dissipated and hasnt returned then I wouldnt be too concerned at this stage. Might be you knocked yourself unknowningingly. I do that all the time ;). Just keep an eye on it. For a PTSD suffer ,the triggers of stress/anxiety certainly do not help with flaring. I find this a constant battle myself.

Can i just ask if your flares are bilateral? Also, are the flares induced by heat? Do you seek coolness to help alleviate?

I see you are on tricyclics. Tricyclics are one of the firstline therapies often prescribed to EM’ers- acting similarly to sodium channel blockers ie local anesthetic and antiarrhythmic agents. Great news that they are helping you. Are you taking any other medications for EM? Many members also take gabapentin (Neurotin) or pregablin (Lyrica) with some success.

Sciatica posts

http://www.livingwitherythromelalgia.org/forum/topics/help-muscle-p…

Have attached some information for you.

BTW: Have you contacted any of those NZ medics?

Big hug

x



Tarsius said:

Hi,

I used to have the occasional blue toe (not always the same one) but since I've started 25 mg of sertraline, pretty much everyday I get blue&warm feet (if I'm sat down for a long time). As soon as I move the blue colour goes away, does it sound like anything you know?

Thanks for your reply. Not familiar with the med you mentioned. Interesting you have had a blue toe. Mine wasn’t painful, not sure if yours was and it went away after two or three days. I’m finding this syndrome seems to have many weird symptoms that are difficult to understand the reason for them. Having only recently been diagnosed ie less than a month ago, I’m learning new things every day. Imipramine, an old tricyclic antidepressant seems to be helping me enormously. So I’m grateful for that for now. X



Heidi said:




Tarsius said:

Hi,

I used to have the occasional blue toe (not always the same one) but since I’ve started 25 mg of sertraline, pretty much everyday I get blue&warm feet (if I’m sat down for a long time). As soon as I move the blue colour goes away, does it sound like anything you know?

Does it look anything like my photo? This was one of my first symptoms of Raynaud's.

119-IMG_1084sm.jpg (14.6 KB)

I have had blue fingers , toes both from Raynaud's which follows white cold numbness as well as spontaneous blue fingers and toes. Like Tarsius my feet will turn blue if I sit too long with my feet down but as soon as I move they return to normal or start to burn. I am not sure but I think it may have to do with blood pooling or something like that. It is similar to how I get spider web blueness all over my body at times called Levido Reticulares if that is how it's spelled. They say this is normally caused by cold but I get this even in the summer. It can last for months at a time. Once I was covered in blue spider webs and went to my doctors, while there my burning just started to cover it. My doctor was amazed because one is supposed to be caused by cold while the other by heat yet they were both happening and it wasn't hot or cold!!

I wish I had some real answers but I just wanted you to know you are not alone in this.

Take care

This question might not have been meant for me, but that's what my blue foot looks like :P The picture doesn't show it as blue as it was I'm afraid.


http://www.livingwitherythromelalgia.org/photo/img-0297?context=user

http://www.livingwitherythromelalgia.org/photo/img-0296?context=userhttp://www.livingwitherythromelalgia.org/photo/img-0409?context=user

I can definitely see the blue in your photo Tarsius.

I added the link to my photos. The first is the blue fingers like yours a dusky blue that for me happens randomly . The second is the blue that is result of Raynaud's and the the last is the blue spider webs from levido reticularis.

oops. here is the spider web blue.

http://www.livingwitherythromelalgia.org/photo/img-0409?context=user

Alina Delp said:

http://www.livingwitherythromelalgia.org/photo/img-0297?context=user

http://www.livingwitherythromelalgia.org/photo/img-0296?context=use...

I can definitely see the blue in your photo Tarsius.

I added the link to my photos. The first is the blue fingers like yours a dusky blue that for me happens randomly . The second is the blue that is result of Raynaud's and the the last is the blue spider webs from levido reticularis.

The fingers in your pictures are definitely blue, Alina! The random blue you get - is it warm or cold?

It doesn't cause me pain (so far...).

The random blue doesn't cause me pain either nor does the spider web blue. The Raynaud's can cause pain.

The random blue doesn't seem to be caused by either. I have had it while warm and cool. It happens often in my feet when I leave them down for more than a few minutes regardless of temp but the hands just happen????

This is essentially skin perfusion . Its because EM is considered an acral vascular disorder as is Raynauds - other end of spectrum. But you also have related conditions such as chilblains (pernio), frostbite and non-freezing cold injuries, paroxysmal finger hematoma

Most EM'ers suffer livido reticulares and blood pooling to varying degrees. I'm afraid I have to join the club as I suffer badly with this blue - red- white 'livido' flag Interestingly, I can sometimes tell if im heading for a massive flare by the mottling stage and colour. Weird.

I find the bluey cobweb tends to manifest in more dormant stages between flares. I experience blue/purple discoloration when limbs- arms and legs hanging down. The blue/purple is called acrocyanosis and results from blood pooling(venous) due to reduced blood supply . The red cobweb livido pre empts my hot lobster EM flares and it can often be present following dissipation. My specialist and I watched the red livido manifest into full blown lobster flare only recently. Its like a fungus creeping over the body.

Whilst red and bluey mottling are EM- related, they are also present in Raynauds. Difference is the blanching that accompanies . As we all know EM is so variable , so we are probably a little different .

Attach photos and explanations of the acral vascular variations we can get.

Its a great article !

Hope this helps :)

116-LividoandEMplusphotos.pdf (613 KB)

I need two hands to take a photo so only have pics of feet. they can be all these colours and more on any day:

Toe still goes purple many years after it was broken


Legs/feet often different colours from each other. Right leg was the one broken a year ago.


full flare and swollen


Swollen/burning but purpley pink


Fun eh?

Thank you Alina, Mads and Nel!

A full-on "rainbow"! I almost get it as well (not as purple as the first toe).

Yes it was very similar. Like a dusky grey/blue bruise. No whiteness which I think is more common in Raynauds.

ArcticLava said:

Does it look anything like my photo? This was one of my first symptoms of Raynaud's.