I have developed tingling pins & needles pain across the top of my foot and at the outer area of my ankle. If I touch the top or side of me foot it shoots down to my toes. Same with flexing my foot up or down. I believe that I am experiencing nerve entrapment. I am looking at going to a doctor who specializes in decompression nerve surgery via the Dellon method. I have had EM for over three years and this is something that has developed about 8 months ago. I believe it is because of the swelling from the EM. I wanted to know if anyone has done this or knows anything about it? Love to hear your thoughts.
I'm sorry I haven't had this done but have sent your question out to the group so hopefully someone that has will see this and let you know how it went for them.
I had this done in 2011 before I knew I had Erythromelalgia. I was having so much pain in my feet that I could not walk so I went to the Podiatrist. He diagnosed me with Tarsal Tunnel in both of my feet and said I needed surgery to decompress the nerves. He said it was like people get Carpal Tunnel in their wrist but you have it in both feet. I went to get a second opinion from 2 Orthopedics and Neurologists and only one said they did not think it was Tarsal Tunnel because it is very unlikely to get it in both feet at the same time. Well, my feet were so bad that I was in a wheelchair, and when I was at home I was in bed or on the couch. I could not drive. I was in total misery. I went to my family doctor and asked him to send me to someone who could fix my feet. He sent me to an Orthopedic surgeon and we decided to go ahead with the decompression surgery. That was the WORST decision I have ever made in my life. The surgery was so horrendous and painful. They put my foot in a cast. I was not allowed to put any weight on my foot for 3 weeks. The pain was UNBEARABLE!!!! I screamed and cried everyday. My foot would turn so red and swell and I kept asking the doctor is this normal recovery for this type of surgery? He said that since your foot is always down it will swell. I finally got smart and took some pictures of my feet and took them with me to the doctor and showed him and said....is this normal? He said...oh no, there is something totally else going on here. To make a long story short, it took me another 7 or so doctors, several tests, and months to finally find out I have Erythromelalgia and I should have NEVER had that surgery on my foot. Can you imagine being cut on your foot and having a cast on it and flaring nonstop? I will never let someone cut on my feet again. I don't know if this is the same kind of surgery you are looking in to doing, but please do lots of research before going forward with it. I would not want you to go through what I went through. This is my experience and I hope everything works out well for you. Good luck!!
Octoberfarm, I see that u r in the Houston area. I have an appointment with podiatrist who is suppose to be very good. He is trained in the Dellon method. I was wondering who you see? I moved here from Florida and I am trying to find a really good doctor. I live in Beaumont but I am willing to make the drive. I was developed EM in 2010. Diagnosed at Shands, confirmed at Mayo. I was diagnosed with diabetes shortly after my EM and feel the two are tied together.
Also was the doctor who did ur surgery in Houston? Shoot me an email. ■■■■■■■■■■■■■■■■■■■■