I just wanted to introduce myself and share my story with everyone. I have not yet been diagnosed with EM, and am unsure whether or not I have it. I've been doing some research lately, and some general EM/Raynaud’s symptoms seem to match mine, but others don't. I joined the community because I’d like to share my experience with everyone and hear about others’ as well!
To begin with, I'm a 27 year old male, and ever since I was about 14, I've had this very peculiar circulatory problem related to my hands. Whenever my hands are down at my side, the blood pools in them and they become extremely red (when they're warm, they become beet red; when they're cold, they become a more purplish color). When I raise my hands above heart level, the blood drains downward and they return to a more normal color. The same applies to my feet - when they're warm, they're red; when they're cold, they're practically purple. I spoke to my doctor about this a few years ago and he said my condition doesn't seem to be a real health issue; instead he suggested that because I'm so fair-skinned, the skin on my hands and feet is practically translucent, and my blood vessels are probably just very close to the surface, so the blood shows through the skin (obviously I wasn't very satisfied with this answer, and I've read about similar frustrations with doctors being unable to diagnose these types of EM/Raynaud's/etc.-related problems).
I've done a lot of research on EM and Raynaud's, and the two factors that seem to be very common are: 1) flare ups, and 2) pain. The thing with me is, I've experienced neither of these. I don't have "flare ups" in the traditional sense - for me it's all just about gravity. If the blood can flow down to my hands and feet, it shows through my skin, all the time. I've also never experienced any pain in my hands or feet - they can feel quite warm or cold, but nothing ever close to resembling "pain." This is why I'm so confused about my condition, and was wondering if others in this community had experienced a similar phenomenon as mine, but without the pain. Aside from the pain, I’m also skeptical about having EM because it seems to involve red, hot flare ups, while for me, even when my hands are cold, they are a purplish color when hanging down at my side. And unlike with Raynaud’s, they don’t change colors randomly – they are either “normal” colored when elevated, or red/purple when down at my side… the blood drains in and out within seconds.
Also, one other odd thing that happens with my hands is that, on occasion, I will get these clusters of little red dots on the top of my lower hand/wrist area. They are not raised and are not painful, and go away within an hour or two. It’s definitely another type of blood vessel-related issue beneath the surface. Have any of you experienced this?
All things considered, it’s obvious I have circulation problems, but beyond that, I’m stumped. While, for now, I've been lucky enough to not suffer any pain, my struggle has been with the embarrassment. I'm very self-conscious about my beet red/purple hands and feet, and am searching for some type of solution. If only it were socially acceptable to walk around with my hands up in the air all day, I’d certainly do it!
Anyway, thanks for taking the time to read this rather long-winded post… I just wanted to get everything off my chest to people who can identify with these very strange symptoms! I look forward to getting to know you guys, and would appreciate any thoughts you may have on my condition, and whether this sounds like it could be EM, Raynaud’s, etc…. or something entirely different. Also, while I realize many of you are most likely concerned with the pain first and foremost, has anyone had any success with masking the redness in their hands and feet through some type of cosmetic solution?