Iloprost treatment


My hospital consultant has recommended iloprost treatment. I have found some past posts about this but not so many recently. I’d be very interested to hear any recent experiences about it, particularly from those who have ear symptoms as well as feet symptoms, but just from anyone who has actually gone through it. The main risk in terms of the erythromelalgia appears to be vasodilation, and the downside is perhaps the time the treatment takes every few months (maybe 5 days in hospital). I’m very interested to your experiences if you have gone through this, or why you have stopped it.