Hello Cindy, my name is Arjuna, and I am an intern here at Ben’s Friends. I am very glad that you were able to find us shortly after your diagnosis. Figuring out what is going on is very challenging, and I understand what you are going through. Have your blood tests completely ruled out autoimmunity? It must be frustrating to not know the cause of your EM, let alone dealing with the peripheral neuropathy symptoms. Judging from your last post I understand you are looking for a specialist in the Bay area to help you out- have you had any luck on that regard? We will try our best to help you through this, and wish you the very best. How have the symptoms been lately?
I am sure you may have noticed the search icon (Magnifying glass) on the top right corner of the screen. This is a great way for you to sift through existing topics and discussions that may be of help to you, as it may give you a sense of what others may have tried to alleviate their symptoms.
We look forward to hearing an update Cindy. Take care of yourself, and best wishes from the community!