I’ve had EM for 11 years, but am newly diagnosed. I haven’t had arm symptoms until the last week-elbows w SFN and swollen and blazing… Then, last night my arms were burning and red. Only patches and ice calmed it. During the 11 years my symptoms changed and affected my legs and feet… why add new sites now?? Is my paycho brain doing this?!!
I am so sorry Jenny Jones. That is terrible! I wish I had an answer for you but I have none. I only have the same question. I had a mild case of EM in my hands for a good 10 years. I didn't even know it was EM. My blood vessels would swell and there would be some discomfort but it didn't usually last long and no one knew what it was so I went along my merry way.
Then about 4 years ago I developed it in my feet as well and much more painful. I can't for the life of me figure out what changed if anything. I can say it's not your brain causing it though. You are not crazy! At first I had doctors try to tell me stress was causing this although I am not a stressful person ( REALLY )
Later After whatever it is has also caused 2 DVT's and they have to admit this terrible stress I am not under can't cause them! Please don't worry about that happening to you. I know some others have blood clotting problems but I think most do not. We each have our own special case of EM ;)
I hope someone has an answer for us. Thank you so much for asking it!