Just when I thought there was no where left to flare,my tongue, lips and palate are on fire They feel and look like they have been badly scalded, sense of taste is distorted (metallic like), i have severe xerostomia (dry mouth) and horrible sore patches. How so miserably painful !.
Was initially dismissed ( ie: its due to psychogenic factors 'all in my head'), and told to go away and suck ice, chew gum and sip iced water - none of which helped. However, this is not just 'flaring' now its like some infection. Visit to my dentist this week has revealed that I am not crazy and that I have real bad 'burning mouth syndrome' (BMS). Whilst she said it was idiopathic , I am convinced that its all part of my systemic EM or fibromyalgic . EM is definitely an enigma!.
Obviously, yet more challenges in terms of diagnosis and management ,but no big surprise that patients with BMS have a trigeminal small-fiber sensory neuropathy. These findings resemble the picture of the "burning feet syndrome" associated with loss of epidermal nerve fibers. BMS sufferers show a decreased density of unmyelinated nerve fibers within the epithelium as well as diffuse axonal derangement. Not prescribed anything new further to the benzodiazepines, gabapentin and amitryptyline that I already have in my arsenal of medications.Just to add that many fibromyalgia, lupus and sjorgrens sufferers report severe BMS.
Does anyone else have this and , if so, have you found anything that helps?.
Have uploaded research/links rather than go into all the details of epidemiology and symptoms.
Burning mouth and menopause
Burning mouth syndrome145-BurningmouthsyndromeIndianJPain29124897545_133615.pdf (377 KB) 146-Burningmouthanenigma2011.pdf (79.4 KB)