I am so sorry to hear about your disappointing consultation . Is IN the only state for you? Are you able to travel out of state? I will check the directory and get back to you tmw (its 4.30 am here - cant sleep as usual ).
Physical medicine usually means physical therapy . Whilst some of us have physical therapy to help with other issues such as oedema or atrophy, you still need an official diagnosis. More importantly, you could maybe be trying some of the firstline medications such as Gabapentin/Pregabalin etc.. Probably this Dr is sending you to Phy Med and Rehab on the premise that you have plantar fascistis. Are you not on any medications at all- for anything? Your profile doesnt really give much information .I tried going back through a couple of your posts but cant quite work out whats been happening. You mention lupus, plantar fascitis. Have you had ANA tests or other tests? How long have you had EM symptoms? Maybe you could update your members profile with a few more details when you feel well enough, it helps members offer you advice and support :)
Just wanted to mention cooling strategies and minimisation of triggers.One good way of better managing EM is via minimising tactics. Alina, Nel and I often say that its easier to try to deactivate the flare than manage it. Listen to your body, keep a pain dairy, photos, and see if you can establish any particular 'avoidable' triggers, say foodstuff such as deadly nightshade family - tomatoes, peppers. You are already aware of 'known 'triggers - heat (and extreme cold), stress, anxiety, fatigue, exertion , pressure. Also stimulants (alcohol, caffeine ), diet (any toxicity, allergies?), products - creams, fabrics, activities? So- what precipitates a flare - is it just 'known' causes. Could it be a medication? Does it occur after drinking soda or coffee? EM is such an individualised syndrome with regards manifestation, symptomology, development, management and treatments.
Cooling - Whilst you may be an EM'er who responds favourably to 'climatising' , most EM'ers respond to cooling http://www.livingwitherythromelalgia.org/page/cool-tips-1 My personal tip is wrap the flaring part in a sheet/cloth soaked in cold water( wrung out) and then position yourself under a cold air fan - on full. Dampness retains coolness/moisture by 70% Other tips are bio freeze topical gel, use chill pads 'chillow' or other icy products (socks/sandals from Natracure- see Amazon ), and avoid overly hot food/drinks, spicy foods, alcohol, caffeine etc.You could even try try Nel's wine cooler pads (its on cool tips)!
Lifestyle changes are also needed - clothing and footwear, pacing yourself- rest(elevate), diet, job change, environmental issues - temperature, stay out of sun, avoid central heating etc..
So, please dont become despondent. Plenty of things that an EM can try to better manage symptoms. I know you will get there :)
Hope you have a more comfortable night
Touch base with you tmw (Saturday)
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