New Member here :) Need some advice!

Hello everybody :) My name is Joey H.

Let me tell you why i think i have this "Erythromelalgia" and how i think it came to be. I would really love some advice from the fellow members on this site...

The other day (December 27, 2014) My feet started to burn on the way to get something to eat... I didn't think nothing of it... i come home to find that my feet are still burning and my hands started to feel numbish and were red, then they started burning slightly.. my hands usually get weird skin things so i didn't think nothing of it... so i go to bed thinking it will just go away in the morning, but.. it didn't I google my symptoms "Feet Hands Hot Burning Red" then i click the link about Erythromelalgia. Now... 3 days later nothing has changed, hands and feet are red... even my knuckls and elbows. really... this really affects my life because i work with my uncle who does carpets and i need to constantly lift and move things and stand for hours a day.. I'm very depressed about this... i haven't told anyone yet :(

Red hands, red feet, red eblows, red knuckles (All burn sensations at time

Hurts when i squeeze things hard, and just is uncomfortable

I can't feel anything... the tips of my fingers are like... numb and feels like there's air in them? Is that normal?

So here's my questions for you veterans of this condition:

  1. Do you think i have this condition with the information provided?
  2. I can't feel anything... the tips of my fingers are like... numb and feels like there's air in them? Is that normal?
  3. Does this go away at all? even temporarily? This really lowers the quality of my life... :(
  4. Is there a cure :( ?

Hi Joey,

I am so sorry that you may have EM. Just a quick answer but please do come back with questions. You have found us and that is a step in right direction.From what you report it sounds like if this is EM you have had an acute onset. I also had this so totally understand your distress- bless you! Couple questions have you been on any medication past 12 months? Have you any other conditions or disorders at all? Does heat induce a red burning flare? Do you notice it occurs more at certain times of day or after certain activities? Do you have any allergies? Have you worked with any new products with your uncle recently? Sorry about the questions :).

1. We can not offer you a diagnosis , Joey. But we can point you in the right direction with details of an EM aware Dr in your area (if we have one). If you wish to upload photos for members to see please do so.

2. Numbness, puffiness is normal in neuropathic conditions. Aside burning heat ,what other symptoms are you having? pricking? itching? electric shocks?, swelling?

3. Depends what type of EM you have- genetic familial, genetic sporadic(no known reason ) or secondary to another condition(or medication, injury). No it doesnt go away but EM'ers learn to minimise triggers (heat, stress, fatigue, exertion), change lifestyle, and try to better manage painful symptoms with a variety of medications. EM is very individualised and severity ranges amongst sufferers. If EM is medication induced or secondary to another condition- remission has been known after treating the secondary (such as an autoimmune disorder like lupus), or after stopping the offending medication. Even some foods known can induce and are to be avoided .Controlling your triggers is a massive factor, as are cooling tactics such as use of fans, biofreeze gel, ice footwear products- booties, sandals etc....http://www.livingwitherythromelalgia.org/forum/topics/cool-tips

Unfortunately EM does impair ones quality of life. Its a miserable , intolerable condition for most sufferers. It tends to be worse as day progresses- after 4pm especially. Triggers need to be minimised, too.

4. No known cure. Current research , however, is hopeful about a new type of sodium channel blocker therapy for pain relief. Most Em'ers are on a range of medications especially firstline therapies - gabapentin, amytripiline, effexor, aspirin.

Joey, try to stay positive, we do not know for certain that this is EM. We all googled our symptoms and felt frightened when we stumbled across EM. There are numerous differential diagnoses that mimic EM such as CRPS- even serious allergies. Think it would be advisable to access an EM aware Dr as soon as you can. We will send you names for your area Ok :-). Take photos from now - daily. Keep a pain diary too. Read the information in toolbox for new members about EM.http://www.livingwitherythromelalgia.org/forum/topics/em-informatio...

Arm yourself with evidence and information. There is no diagnostic test for EM - its based on clinical presentation and patient history- so get prepared for that medical consultation.

Try to minimise triggers- namely 'heat 'over the holidays and stay in contact with us for support.

Its going to be alright- stay positive. There have been some cases of remission :-)

We are all thinking of you!

God bless

Big hug

mads x

You are soo helpful mads! Let me answer your questions :)

Medications? NO. i do not take any medications, not within the last 12months for sure.

Have you any other conditions or disorders at all? I may have a colon problem.. never do check-ups :(

Does heat induce a red burning flare? Yes, yes it does..

Do you notice it occurs more at certain times of day or after certain activities? Well i've only had this for 3 days but.. 2 of the 3 days i've worked with my uncle using my hands a lot.. that makes my hands really red and burn.

Do you have any allergies? A long time ago i was told i had a grass allergy... but i wasn't around any of that specific grass I'm sure. "Bahia Grass"

Have you worked with any new products with your uncle recently? This condition started the day before i worked with him, i haven't worked with him for a good week or so.. and nothing new.

If you wish to upload photos for members to see please do so.

Here's some photo's of my hands and knuckles (Not burning too bad)




Sorry if the pictures are too big!

Numbness, puffiness is normal in neuropathic conditions. Aside burning heat ,what other symptoms are you having? pricking? itching? electric shocks?, swelling? Swelling for sure... the biggest problem i have is i can't feel with the tips of my fingers... it's really bugging me :( I CAN'T FEEL!

I can take the pain.. it's not too severe... i just really want to feel with my fingers again!

I really hope this is something else :( Life is going to be really difficult if this is something that has to stay with me... i don't think i can do this..

Thanks for your kind words! *Hugs back*

Oh and.... This all started the day i got really depressed/stressed out... could that have something to do with this? It was VERY stressful and sad.

I'm not a doctor, but I wonder if this condition will go away after rest and some time away from the work. Sometimes we can over-react to a symptom and think we have something when we don't and later recover. I know in the case of my hands and feet, at times I've had hot feet and it was just normal hot feet from athletes feet and poor foot hygene. In other words I'd be active and suffer from burning feet which are more like an athletic condition.

Another time I had a lot of activity but it was in the cold and when I returned inside my hands were swollen, but I wasn't very active and I worked a lot in the cold shoveling snow. The symptoms I had were like burning hand syndrome, but they cleared up in a day or so, and were just from over work or the cold.

That being said, sometimes young people develop a burning foot and hand syndrome and it's due to neuropathy. With Neuropathy, it seems based on what I've read, that numbing and tingling can happen as well as cold and burning sensations. That seems to be able to come on people all of a sudden, perhaps due to some kind of nerve damage.

I'm wondering if something in the carpet install, like fibers could have caused a kind of contact allergy for example being allergic to some kind of chemicals in the carpet. A doctor and getting a checkup can often relieve one of imagined problems and rule out problems that aren't there and sometimes it's worth the visit just to rule out what it's not.

EM usually doens't involve numbing and purple sensations and cold and muscle atrophy that we'd see with a neuropathy case, from what I've read and seen on the net. EM is more often redness and hot pain flares, but of course you can get that from other things if it remains temporary.

I don't know if I've ever read where someone developed EM suddenly in both the hands and feet before, so my gut feeling, which of course is not any kind of real diagnosis is that you probably don't have EM but perhaps something else. That's just my guess. . . but only a qualified doctor could tell you for sure. So go check up and find out.

As far as EM it can be caused by Lupis, cancer, diabetis, or other problems, so you'd probably want to rule those out. Also EM affects women more than men, so you might have that hope going for you. It's much more rare for men to get EM than women statistically. Of course statistics don't mean much if you're the exception. . .

This is just my gut reaction and in no way am I a health professional giving medical advice. All the usual disclaimers apply.

I'd go to a doctor and get their opinion on it.

In my case of course or I should say in the case of my immediate family, if we get any thing that causes our feet to burn a bit, we may wonder if we have EM or inherited EM because my mom has EM. My mom's EM is likely caused by a reaction to medication however. It's difficult to say if that triggered an inherited EM reaction. We won't know unless we get her genetically tested. I suppose for some with family members who have EM the question of EM will loom over their minds more.

Stress and sadness is another thing, but perhaps it's just a side effect of the health problem. Did you feel stressed before you had the symptoms? You should get examined by a doctor and get the physical problems ruled out first in my humble opinion.

Some other questions to ask yourself.

Does cooling help relieve the pain. Putting your hands it cold water reduce the pain and flaring?

Does elevation of the hands and feet reduce the pain?

It's important to note that some people experience EM with other things happening or as a result of other things. Things that seemed to trigger EM in some people included cuts, hurting one's toe, etc. Things like stubbing a toe brought on an onset of symptoms in some. Which is a mystery but only a quote from some of my earlier reading regarding the disease.

It's difficult to say what will trigger the disease. But those with EM will say heating up of their feet or hands in warm water will cause the symptoms to get much worse and cooling will cause the symptoms to be reduced, so that is one test you can do to see what happens.

Elevation of the feet of course can reduce swelling from normal work and swelling that may occur with people who have other circulation problems or are just getting older and having foot problems. If I'm up a lot my feet can ache and laying down allows recovery. That's much different than extreme EM cases. And often with extreme cases, the pains can be mixed with other symptoms. It's important to take your time and talk to health professionals to rule out things that could be the cause of a temporary hand or foot problem.

Even doctors can be confused, my mom had fungus on her feet when she developed some pain flares and had early flares of the disease. At one ER visit a doctor noted she was suffering from Atheletes feet fungus problems and that was the main diagnosis. The goofy doctor put down fungus on the diagnosis and the insurance company said, we don't pay for ER trips due to Atheletes feet. . . So someone who suffers from EM can be misdiagnosed by doctors who don't know or haven't seen the disease. Other doctors can come up with theories for "secondary EM" or what caused it.

Often these causes may be resolved and stop the burning symptoms once you get the cause solved. I heard one theory for example (among many in our case) which was a guess of a food allergy, a need to get off glutin. There are many theories that doctors can try to use when a rare strange case is encountered. Something they seldom see.

If you have EM, the pain flares will continue and get worse, if it's without a known cause. If you have secondary EM or something else it will go away as you normally recover or the cause of the problem is removed.

These are just some thoughts off the cuff, based on what I've seen and heard. . . you can test your reaction to heat and cold before you see a doctor. But I'd still see a doctor. Also if you've used over the counter pills for allergies you can try those to see if they help, but be aware that these can cause other side effects, so I wouldn't go overboard and would suggest seeing a doctor and going over this with them.

Hello, watchman! Thank you for giving me this advice! Gives me hope that it may be something else! I really appreciate the feedback from you, Lets answer your questions.

The symptoms I had were like burning hand syndrome, but they cleared up in a day or so, and were just from over work or the cold. i may have over worked my hands lifting weights maybe but.. i do that all the time.... I'm in Florida, tis very hot now a days :) I didn't touch anything really hot or cold that day.... well actually the pizza box i was holding that day was very hot.... hmmm.... but still the feet started just before i got the pizza.

I'm wondering if something in the carpet install, like fibers could have caused a kind of contact allergy for example being allergic to some kind of chemicals in the carpet This started the day BEFORE i worked with him, i haven't worked with him a few weeks before this.. and everything was fine.

Stress and sadness is another thing, but perhaps it's just a side effect of the health problem. Did you feel stressed before you had the symptoms? I was only stressed out because i received some bad news from someone... I'm still stressed about it, but... later that day is when i got these symtoms, wasn't really depressed before this day.

Does cooling help relieve the pain. Putting your hands it cold water reduce the pain and flaring?
Well.. my hands don't really have a hurting burning sensation.. i can take the pain.... doesn't hurt that bad. but i put my hands in cold water for you and it barely took any redness away
But it felt good :)

Does elevation of the hands and feet reduce the pain?
Really no constant pain to be reduced right now..and my feet aren't really that bad. But I think it might... when I'm not standing on my feet they're okay.

But those with EM will say heating up of their feet or hands in warm water will cause the symptoms to get much worse and cooling will cause the symptoms to be reduced, so that is one test you can do to see what happens. I applied very cold water for a few minutes or so.. it felt good on the hands, but.. they are still red. I applied very hot water on the hands and it burned (maybe cause the water was hot lol) but that didn't really make my hands any worse :/ maybe that's good news?

Dear Joey,

How are you feeling today?

Interesting that you mention being highly stressed - a well known trigger You also reiterate about the exertion involved working with your uncle causing your hands to really burn( another trigger). Considering that you do have an allergy, it is quite possible that this is an allergic 'histamine' reaction.I stress that you may have been in contact with something- however random, a new carpet glue etc... that may have provoked this flaring response. Are your flares just localised to hands and feet? EM varies from person to person and the majority of sufferers ie: non genetic familial are known to suffer beyond the 'classic symptoms' of redness and burning hot pain. Sporadic acute manifestation of EM tends to have multiple symptoms which may include numbness, swelling, livido, itching, flaring to 'cold' as well as heat , searing burning pain,pricking, muscle cramps......, it tends to progress quickly and can be systemic. Both Alina and I have this type. Have your flares grown worse over past few days? Joey,EM is an enigma with a blurry pathophysiology , I agree with Watchman that it would be prudent to seek diagnosis sooner rather than later - speculating will fuel your anxiety. Bless you!

Big hug

mads

I still can't feel my finger tips and my hands are hardening up... .seems like it's more of a callus build up on the tips of my fingers than numbness.... also my hands and feet aren't ever really "BURNING" they are just really hard and slightly painful at times... also my nose started peeling :/ any suggestions?

Also i do get random itches at times.

Could this be diabetes?

Hello Joey.

Quick note to let you know I just wrote here to you and it has taken me such a long time to do so because I tend to ramble and I am not the best at typing! Something happened and I lost it all before I could post it! I will return and write again but after a short break. I just wanted to tell you how sorry I am that you have had such stress and then have these problems with your hands and feet on top of what you are already going through. I will write in a bit regarding EM.

Hang in there Joey. We are all here to offer our support :)

Hello again Joey.

Now regarding EM and diagnosis like everyone else has said before I must say I too am not a doctor and can not diagnose but I can share some of my experiences and what I have learned regarding EM

I have found that stress can be a factor in the onset or worsening of EM. Many cases of EM including my own come about during or just after a stressful event. It isn't that stress causes EM it's just that it weakens out defenses and allows EM or any other condition to penetrate our bodies defenses which was previously being fought off. If stress was to actually cause EM we would all have it! I don't know of one person that has managed to go through life without stressful events.

My EM started or should I say progressed quickly within a couple of days of a highly stressful event. Now that I know what it is I am aware I have had this ever so mildly for many years prior to it going crazy and disrupting my life. For years I would get sudden onsets of bulging veins with mild pain in my hands that seemed to come and go with no reason. It was mild enough I never gave it a second thought. I also was more sensitive to cold . I would get hypothermia like symptoms with raised bumps all over my body along with itching and redness when exposed to what is to others a reasonable amount of cold. Everyone else with me would just be a little cold unlike myself. I now know these were mild symptoms of my Neuro vascular instability including EM , Raynaud's and lavido reticularis.

EM can occur and progress rapidly in some people while others have milder symptoms that never progress. This is part of what makes it so difficult diagnose and treat. Everyone's EM is different. With this being the case it is impossible to say weather one persons symptoms are caused by EM or not Just by comparing with someone else's symptoms. However learning about other's symptoms does help shed some light on the many faces of EM.

I know you mentioned this began BEFORE you began work with your uncle so it goes without saying the cause of your symptoms should not be related to your new job. Things there can certainly aggravate your symptoms making them worse such as the temperature there being warmer , the activity involved or certain chemicals you may be exposed to.

There are still other possibilities for your symptoms and only a visit with your doctor can help you get to the bottom of this. Although as Mad's pointed out there isn't any test for EM they can run tests to rule out other possibilities as well as some tests that may indicate possible EM. In the end it is diagnosed by clinical presentation so pictures and a diary of symptoms is a must. I would also bring print outs of information on EM to your appointment because most doctors have never heard of EM and therefor would never consider it a possibility.

Regarding Diabetes this could be the culprit because diabetes can lead to neurological problems and this is easily tested for by your doctors. As far as the tightness almost like calluses goes. I have this intermittently but this could be a complication of an autoimmune disease I have too. The numbness I have in my hands and feet come and go but can last for a few days at a time . I once had it in my feet for almost two months. I would have to drive barefoot because I could only feel the peddle with my heels. everything else was numb. Once again I am not of much help because this could also be caused by autoimmune.

I would keep a diary of all symptoms you have even if they don't seem related. Your doctor will need all of the pieces of the puzzle if he/ she is to put it together.

I hope it isn't EM and if it is that it is caused by something else than can be treated therefor alleviating your EM symptoms. Please keep us up to date on how it goes. We are here for you so ask all the questions you have and we will do our best to help you.

All the best Joey

I'm only guessing in general terms from the very narrow experience I've seen and others may have had different experiences, so they can offer good advice.

Keep in mind that I'm not a doctor and cannot be diagnosing your disease as a matter as a professional, so my opinion is just that a layman's opinion.

Doctors will say at least when they study the basics of the EM disease, that a characteristic of the disease is it worsens when heat is applied to the area and is reduced with cold. Since you're symptoms aren't worsening with heat, chances are you don't have EM. There are of course many things that can cause hand and foot problems. If one has some other problem and it's causing a problem with the hands and feet then that primary cause can often be found. Stress can affect us negatively. So that of course could be a trigger for something and of course can make many diseases worse. If I was to search out and list all those diseases, it could just cause you more worry when a health care professional can narrow things down much better for you.

The tests for many of these "primary" causes for a syndrome can be figured out. Some apparently can develop EM quickly. I'm going to mention a different disease, but I don't think you have that either from your description, but this is just my layman's guess. Neuropathy can also affect the hands and feet negatively. I know of a guy who I used to work with occasionally and ironically he developed Neuropathy as some senior citizens get it, or some people with health problems, but this guy was only in his early 50's. And he all of a sudden couldn't use his hands and feet because of the fast onset of the disease. They didn't really offer any hope for him, but this is a relatively rare condition to many people who have no other cause. I don't even know if he got it due to a diabetic condition. Diabetics can get neuropathy. In the case of this guy, he couldn't use his hands or feet and he developed muscle atrophy, from what I've heard and was very weak and crippled from it. He ended up in a nursing home near his sister's house so someone could visit him and takes more pain medications than anyone else in the hospital. So he got a severe form of the disease,

I saw a lady who had this disease at a local nursing home and she was an old lady who couldn't bend over and pick up her remote control for her TV set which was on the floor, because her hands would not function well enough to pick up a remote control. She asked me to pick it up for her, which I did. She said, she was hoping for a "grabber" device to be able to pick up the remote. Her hope was in getting a simple grabber device. When I looked at the shape her hands were in I wondered if she'd have the strength to use a grabber, maybe she would and had other issues, but her hands looked terrible and very weak and I thought she couldn't even use a grabber, but that was just a quick impression, not a diagnosis for sure. So many elderly and sometimes younger people end up with these conditions.

I'm pretty much at a loss for words, not because I know a lot about medical conditions, but because I'm less learned than many others and it's easy for others to throw out symptoms and share where they are, but you could have something really different or perhaps minor that will resolve itself. Sometimes people develop symptoms that get worse over time because of an underlying condition and sometimes our minds are just overactive from our own imaginations and the problems go away.

I'm happy to hear that it seems to be minor compared to some major problems. I can say that with allergies from stuff we've seen on the news sometimes people get a reaction to something they encountered and it could be sudden and new to them. For example the famous creator of the Muppets died from an allergy to a chemical pest control. It's important to find out from a medical person what is happening if something is happening and doesn't resolve itself. Sometimes our mind may make a bigger thing out of something. I had a case one day as an example where I felt like I was dizzy about to pass out and sick to my stomach. I felt very weak and fatigued and this was during a hot spell. I felt so bad, I had a friend and work drive me to a nearby ER, because I thought I was going to pass out on the way possibly if I drove myself. We hear about people in their middle ages dying suddenly of a heart attack and not being serious about the symptoms. I was fatigued from a burning the candle at both ends and missing sleep however. I turned out that the doctors checked me out and gave me a stress test. I didn't have any heart issues, but was dehydrated and fatigued. It was better for me to get checked out than to drive away and ignore a symptom. Now in hindsight some rest and proper hydration would have helped me greatly and I could feel foolish about seeing a doctor, but it was good that I checked it out anyway. (And my insurance covered the ER visit.

I hope that this helps a little and hope that you don't have EM or other nerve related issues or other serious problems. it's a good thing to check these things out.

As a side note I went down to Florida to visit a relative that was sick. They had bug spraying done to their house to keep the bugs at bay. My sister and I stayed down there for an extended stay and either the bug spray or other odors from the house were making us feel physically sick while we were there. We were getting sick possibly from the extermination service. Our relative had health issues that were not related to the spraying but that seemed to possibly bother us, just that change. So there are many things out there that can hurt or harm us and the body normally has a pretty tremendous ability to heal and recover from many of these things.

I don't know if really comprehensive and long health surveys of EM sufferers have been made that can provide any more clues to primary EM for those who have that. It would be interesting to see if there is someone who collected that data and was able to find anything else that was a possible cause of the EM cases we hear about over the net. I think TEA.ORG had a survey, but I don't know if it was detailed enough or read enough and analyzed by doctors studying this rare disease to be of any help.

Sorry to be changing the subject a bit I just wonder about some of these things for the ones who seem to have EM without any known cause. There is a lot of almost "urban legend or old wives tales" kind of theories that we can hear or speculate about with different diseases. Probably a subject for a different thread and maybe a different forum altogether. I've heard some interesting ones. Here's some of the stranger speculations I've heard from some people. An old guy told me he had a theory that "black ants" caused cancer. He pointed out many people he knew that had and died of it, had black ants living around their house. That's an interesting theory, isn't it? Some guys who smoked and died of cancer may have had black ants by their house, but that doesn't really mean that they caused it. Ants in particular eat and digest biomass including dead things, as much as 40 to 60 percent of the biomass of the earth is digested by ants, so they are around dead stuff. But does that mean, they can be a cause of cancer? Along that line of strange and out there thinking, I read somewhere that people who live in cold climates, in the north statistically develop a greater chance of getting MS. If you are in a cold climate you chances at getting MS are double that of a person living in a warm climate. Why would that be the case? And it's for those who were born and raised in the cold climate, growing up in that climate, not living there for their entire life? Why is that? People can or could speculate. What would an old wives tale speculation be for that as a cause? My mother has EM, the girl across the street developed Fibermyalgia. A few people nearby other neighbors developed MS. Two got a rare case of MS of the brain, which is usually hereditary. Why the MS, Fibermealgia (spelling) and EM nerve cases in such a close location? Could it be environmentally based? Who knows. It's probably very difficult to track and find out. And it's probably more difficult to find that out now that privacy laws keep people's health records more secure. It's difficult to say what causes some of these illnesses. Some strange diseases like MS are labeled as being the cause of some rare virus sometimes, as has been the case in the past, then later the story or article is never proven and it becomes just another theory. It's really difficult to say what is the cause of some of these more esoteric and crippling illnesses. There may not be a common cause.

With EM, primary EM without a known cause, the set of symptoms and how the body reacts to heat and cold often become the diagnosis of a syndrome, or a "set of symptoms" it's a common set of symptoms, but we may not know what the true cause for all these cases are and may never know. It may be that they are all unrelated.

In my mom's case for example, sometimes she claims that a heavy dose of antibiotics will help her symptoms a bit. Some ER doctors claimed (knowing nothing about EM) looking at her feet/skin condition that her pain was an infection and made silly claims that two weeks of antibiotics would cure her feet. . . of course these were just educated guesses by someone unfamiliar with the disease or syndrome and the antibiotics didn't work.

Neurological disorders are really tough to figure out. They are often guesses being made even by the best educated doctors who really don't know for sure what the cause was for the problem. They may offer different therapy options willing to practice and test a particular drug. Drugs that may help one burning foot sufferer may not help another one. The EM cycle of pain is something that is very difficult to figure. In the case of my mom, she probably has permanent nerve damage or perhaps brain damage or some kind of auto-immune response disorder. It's very difficult to tell. About the only thing educated doctors can agree on is, it's nerve related and it's permanent. Of course we as a family often want to have hope and faith that something positive may happen in the future or some miracle can occur. (I've seen miracles by the way as well and seen people recover as a result of prayer and healing that isn't necessarily from a doctor on this earth, so anything is possible). It's tough however to have much hope when one is dealing with chronic long term health conditions that never seem to go away and never seem to show any hope toward recovery. Such is the case for some, like our family.

Sorry I've kind of gone off topic and started to speculate and chat a bit off topic. In any case I'd say the news of you're responses to heat and cold look a bit promising toward a negative EM diagnosis and that's one good bit of news, at least in my layman's humble opinion.


Joey said:

Hello, watchman! Thank you for giving me this advice! Gives me hope that it may be something else! I really appreciate the feedback from you, Lets answer your questions.

The symptoms I had were like burning hand syndrome, but they cleared up in a day or so, and were just from over work or the cold. i may have over worked my hands lifting weights maybe but.. i do that all the time.... I'm in Florida, tis very hot now a days :) I didn't touch anything really hot or cold that day.... well actually the pizza box i was holding that day was very hot.... hmmm.... but still the feet started just before i got the pizza.

I'm wondering if something in the carpet install, like fibers could have caused a kind of contact allergy for example being allergic to some kind of chemicals in the carpet This started the day BEFORE i worked with him, i haven't worked with him a few weeks before this.. and everything was fine.

Stress and sadness is another thing, but perhaps it's just a side effect of the health problem. Did you feel stressed before you had the symptoms? I was only stressed out because i received some bad news from someone... I'm still stressed about it, but... later that day is when i got these symtoms, wasn't really depressed before this day.

Does cooling help relieve the pain. Putting your hands it cold water reduce the pain and flaring?
Well.. my hands don't really have a hurting burning sensation.. i can take the pain.... doesn't hurt that bad. but i put my hands in cold water for you and it barely took any redness away
But it felt good :)

Does elevation of the hands and feet reduce the pain?
Really no constant pain to be reduced right now..and my feet aren't really that bad. But I think it might... when I'm not standing on my feet they're okay.

But those with EM will say heating up of their feet or hands in warm water will cause the symptoms to get much worse and cooling will cause the symptoms to be reduced, so that is one test you can do to see what happens. I applied very cold water for a few minutes or so.. it felt good on the hands, but.. they are still red. I applied very hot water on the hands and it burned (maybe cause the water was hot lol) but that didn't really make my hands any worse :/ maybe that's good news?

Thank you all for the feedback and support... makes me feel as if I'm not fighting this thing alone :(

Well i got an update for you guys! I told my family about it and went to the hospital today..seems they avoided my numbness or lack of feeling in my fingers and toes (even though he did a feeling test in my hands and feet) which by the way i couldn't really feel anything and he was pressing hard! They are pretty much trying to treat this as a rash.. even though i know it's not a damn rash! (I think) i mean that doesn't explain my lack of feeling in my tips of toes and fingers!

They gave me this steroid shot Well they put an I.V. in my vein (Don't remember the name) but it's used to stop inflammation or something (Will let you now what it's called when i remember) That's what's new soo far.... gonna see this other specialist and go from there :/ wish my luck friends

Thank you for letting us know how you ate doing. I can’t remember just how many times I was told it b was a rash before finally getting a diagnosis. A rash doesn’t flare up with warmth activity stress and get better with cooling rest and elevation.
I feel you frustration. Getting a diagnosis was the hardest part of this. I was told I was crazy and didn’t need medical help but mental assistance!
You have one thing going for you or should I say several things going for you. You know that EM exists for one you thing. You also have a great support team here that can help walk you through it. It took me a little over 2 years but I didn’t even know this existed and couldn’t bring information on it to my doctor.
I hope you can find some real answers at your next appointment and please let us know how it goes.

Hi Joey, thanks for your updates. It is not unfrequent that doctors don't know what to make of us but I hope that the new specialist will be able to help you! Good luck!

Hi Joey,
I wouldn’t tie yourself up in knots trying to decide where this came from. There are so many possibilities and you will probably never know. I just wanted to add to all the wonderful advice you have received by saying that in my case I too had the ‘rash’ diagnosis and fought against it for two years. Years in which I hardly slept and honestly thought my productive life was at an end. Sadly the rash is the only bit of the disease that doctors recognise and so they latch on to it as they can then ignore the rest of the symptoms which they don’t understand.
I also have the numb, thickened skin ends to my fingers so that I drop pieces of paper, my credit card (often) and shopping lists but this hasn’t progressed and is no worse now than when I began with EM. I can also hand on heart say that my flares are no worse, in fact are better than when my world blew up nearly 5 years ago.
It won’t necessarily get worse so keep optimistic.
All the best

Got a huge update for you guys :) I never went to that specialist person for my insurance actually isn't covering me anymore since it has been soo long since i went to any doctor or anything, so...

But.. I have wayy more feeling in my finger tips and have complete feeling in my toes now.

The redness is pretty much gone, comes and goes but pretty much non existent the burning has been completely gone.

Everything that was red and hot before is now PEELING which is really weird but i hope it's a good thing.

My hands are healing up nicely but they were peeling pretty bad, i will take a picture here.

Hi Joey,

I'm so glad to hear that feeling is returning and that the burning has gone completely. Yay for you!

Your peeling fingers look a lot like my peeling face when it peels. And I've had the same thing on the bottom sides of my toes. I was prescribed cortisone cream for it which moistened it and seemed to hurry the healing. May be you should talk with your doc about something to help it.

It was so good to read your positive post :)

blue

That’s really good news Joey. Your peeling hands look like mine in the Summer and after a dehydrating plane flight. I use intensive heel cream on them and it usually does the trick. I think I once used a steroid cream as well. Once your hands have returned to normal hopefully that will be an end to the whole episode.