Hello I am a new member from Slovenia (Europe) and English is not my first language. I hope you will understand me anyway. I suspect I have widespread Em (burning, redness, needles and pins… I have been searching to find a doctor to give me diagnosis. So far without success, the doctors i had visited so far, didn’t even hear about Em. GP, 2 rheumatologists, anasthesiologist… When I show them EM flare photos, they don’t have a clue- I’m desperate.I’m still waiting to see dermatologist and neurologist. So far i manage my symptomps by elevating legs, cool strategies, pain killers and sleeping pills…thank’s god I’m not working at the moment…but today suddenly sharp, excruciating pain emerges in my right leg from my buttocks, down my thigh and calf, it feels like someone is pulling a barb wire through my entire leg. Leg is not red and hot, the foot is extremely cold. The pain is unbearable, I took a bunch of painkillers (Ibuprofen, mix of tramal and paracetamol. Could this be Sciatica? What kind of relief do you recommend? Can this be a side effect of low IV lidocaine infusion? I recieved 20 mg 4 times by pain managment doctor on my request, after I had showed him some American studies. As soon after IV administration my legs started to swell and turned red (balooned), swelling has never resolved, I noticed i had problems with constipation, bloating, acid reflux, and weight gain. Anesthesiologist said the dose was too low for any side effects. I’m afraid that these doses would do more damage than good, because Mexiletine is not available in our country to countinue after. I don’t judge him, he is the only person who is trying to help me somehow, eventhough he is not experienced in Em. I would appreciate any kind of advice from your fellow sufferers. I am all alone in this country, Please help me with your advices. i admire your strenght and courage. I had suffered a lot in the past (RA, Fibro, breat surgery etc, but this horrible EM condition, I couldn’t cope much longer. My family doesn’t understand or support me. This redness seems more like a cosmetic problem to them.
I’m sorry if I was too long, appreciate any kind of advice. Carter I would really like to get your opinion on administration of Lidocaine and Mexiletine , you should get PhD in EM honours.
Good night sleep tight, It’s almost midnight here, I pray for at least two hours of sleeping.