Just thought I would update you all on where we are , this information could be potentially relevant and I'll post it on the forums when Emily starts her treatment.
So , cold laser therapy did not work, long shot anyway, we purchased a laser nasal kit for Emily which she continues to use every day for 25 minutes.
I had stumbled upon an article regarding MTHFR and related gene defects, there is a GP in Stirling here near Adelaide who has had success in treating people with the gene mutation. So we thought we would get Emily tested just to rule this out as a possibility.
I had actually left this more than a week to go and get the results thinking they would come up negative, picked them up on Saturday and to my astonishment Emily has tested positive for the double mutation, C677T and A1298C.
Extract from article
The worst combination is 677T/1298C in which you are heterozygous to both anomalies. Many chronic illnesses are linked to this anomaly. Fibromyalgia, irritable bowel syndrome, migraines, chemical sensitivity, frequent miscarriage and frequent blood clots are all conditions associated with MTHFR anomaly.
We try not to et too excited about possible solutions but it’s hard not to, I have spoken to the Dr, and we are hoping that Emily can supplement with methyl-folate and methyl B12 and we can see what happens.
I will certainly keep you posted on any or all progress, considering the conditions to which this is related it might be that EM sufferers should have a blood test for this mutation if nothing else but to rule it out as a possibility.
This is worth a read, Davipot: http://fayeflamwriter.com/inquirer-magazine-investigation-gene-based-vitamin-scam/
The MTHFR defect is not necessarily all it's cracked up to be.