I saw my rheumatologist a couple of weeks ago.
Further blood tests were able to rule out autoimmune involvement which was good
He then explained that my symptoms were being caused by a number of things;
- Joint hypermobility Syndrome
- Autonomic dysfunction
- Raynauds disease
Im not sure if what im experiencing is related to joint hypermoblity syndrome ( ‘stretchy veins’ leading to the blood pooling in my hands knees and feet) or if it is part of raynauds - hear that hands can get red and hot in rhe heat - the opposite of what they do in the cold ( … I think this can happen?).
Since that 5 days (where my hands seemed stuck in a red hot swollen state) - hands havent gotten to that point again thankfully; but still regulary swell up (usually only lasts a few hours).
The bad flushing and on my arms, face and chest is stil ongoing and pretty much a daily occurrence.
I have a referral to see another specialist for a second opinion (and to see what else could be contributing to symptoms)…
Im feeling a bit frustrated and down
but its good to at least have some answers.
Im sorry I havent been posting or checking in… I was a bit unsure about whether I should or not… as I cant be 100 percent sure about what’s causing what anymore.