Browsing the site I see it is common to disappear for days ,or longer due to having " bad days" This made me consider what this means to different people and wonder if you might share ,with the view of finding wether we have any commonality or are quite different. Not wanting to dwell on the negative , but am feeling a bit confused about some of my symptoms??..
I can be fine ,restricted by temperature and standing times of course ,but still what I think of as classic EM .I am mainly aware of feet , right foot in particular with bouts of burn and leg ache. With meds I can ignore and mainly get on with things then out of the blue…misery
I am so fatigued and everything hurts ,in particular my joints ache. My skin feels like it has a layer of acid under it that pools in my hands and feet. Strangely ,at these times all my joints feel stiff and sore - this is despite the fact all arthritis tests are negative. Seems odd, as my otherwise " classic EM " feels like all over.
At this stage I have had every test known to medicine and they are fine,so I suspect that maybe classic EM does not exist.
Usually I rest , bathe ,medicate ,arthritis cream my way through and low and behold off I tootle back in my " normal " EM state.
Sometimes I know I am tired or otherwise ill , but sometimes there seems no explanation. Made me wonder if we are all referring to the same ?
Hope some of you might share what happens,or if you are in fact steady…Tizzy