My name is Kristie and I have Erythromelalgia. I was diagnosed in 2016 and have experienced many challenges. Thanks to my EM support group, I was able to overcome the beginning stages; accepting my new way of living with EM. I am also a doctoral student at the University of Southern California, and my mission is to create an organization or a new innovative service to better support the rare disease community. A large part of my mission is to educate people about the negative effects of loneliness, and helping improve the quality of lives for individuals with a rare disease.
I’d greatly appreciate it if you would take 5 minutes to complete this 100% anonymous survey. Feel free to reach out to me directly by emailing me at ■■■■.